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Stacie Fanelli, LCSW

Tap into your
self-expertise

Collaborative, identity-affirming psychotherapy for eating disorders,

late-discovered neurodivergence & more

Sometimes I leave therapy and realize I spent 40 minutes talking and didn’t get to the thing I really wanted support with, or that every time my therapist spoke, I felt impatient waiting for her to stop so I could continue (my head nodding in the interim a definite mask). Not because my therapist wasn’t present but because I filled the space so fast I didn’t even notice I was skimming the surface.

As a therapist and a fast-talking, story-stacking ADHDer, I think a lot about how we hold space for clients who process verbally, intensely, and often with shame about being “too much.” Especially when both therapist and client share that trait.

Talking a lot in therapy doesn’t always mean someone is avoiding. Sometimes it’s how they think. Sometimes it’s how they try to stay safe. Sometimes it’s how they’ve learned to keep people close.

This post is for clinicians who want to support talkative, external-processing clients without pathologizing that style and for clients who’ve been told they’re too much, too fast, too loud, too detailed. You're not. Your way of speaking makes sense.

#ADHD #Neurodiversity #NeurodivergentAffirming #Therapy

Sometimes I leave therapy and realize I spent 40 minutes talking and didn’t get to the thing I really wanted support with, or that every time my therapist spoke, I felt impatient waiting for her to stop so I could continue (my head nodding in the interim a definite mask). Not because my therapist wasn’t present but because I filled the space so fast I didn’t even notice I was skimming the surface.

As a therapist and a fast-talking, story-stacking ADHDer, I think a lot about how we hold space for clients who process verbally, intensely, and often with shame about being “too much.” Especially when both therapist and client share that trait.

Talking a lot in therapy doesn’t always mean someone is avoiding. Sometimes it’s how they think. Sometimes it’s how they try to stay safe. Sometimes it’s how they’ve learned to keep people close.

This post is for clinicians who want to support talkative, external-processing clients without pathologizing that style and for clients who’ve been told they’re too much, too fast, too loud, too detailed. You're not. Your way of speaking makes sense.

#ADHD #Neurodiversity #NeurodivergentAffirming #Therapy

I'm very picky about where I get my continuing education because I can't do ~professionalism~ very well. Before I knew I was AuDHD, I'd be on the brink of a meltdown for about a month after getting home from a two-day conference and spiral into shame, wondering how I'd ever hack it in this field. I can't: dress in business casual, engage in more than 10 minutes in a row of small talk, applaud problematic talks just to be polite, partner up with my neighbor to practice a clinical skill, or stay off my phone for the duration of someone's presentation. This was my third @recoverwithmeda conference, though, and each year I've felt more and more accommodated and less pressure to mask. The fact that three separate proposals for talks on supporting neurodivergent clients (including mine and @therapywithjocelyn's on autistic food culture), were accepted alone is a sign of the changing times. The fact that I could stim freely while wearing my Uncrustables spirit jersey and Joce could hold their Squishmallow; the fidget-sharing and info-dumping circle of professionals that assembled after the radical ND self-care talk on the hotel lobby floor; the absence of a single comment about treating or eradicating autism - these are just a few signs of the changing landscape of eating disorder treatment. I feel hopeful, which is something I worry doesn't come across when I repost troubling ableist and fatphobic rhetoric on my stories. To be clear, organizations can and still do need to do better, and calling them in is how that happens, but as @heysharonmaxwell and @bodyjustice.therapist spoke about in their talk, if clinicians can't hold hope for clients' recoveries, how can we expect anyone to move forward? Balance is not a natural strength for many AuDHDers; it's something I personally have to manually locate internally every day, and it takes a lot of spoons, but I'm walking away with a renewed motivation to try.

*typo on slide 3: should say "justice-based" exposure therapy (a very cool concept, btw)

#EDTreatment #Neurodiversity #ActuallyAutistic

I'm very picky about where I get my continuing education because I can't do ~professionalism~ very well. Before I knew I was AuDHD, I'd be on the brink of a meltdown for about a month after getting home from a two-day conference and spiral into shame, wondering how I'd ever hack it in this field. I can't: dress in business casual, engage in more than 10 minutes in a row of small talk, applaud problematic talks just to be polite, partner up with my neighbor to practice a clinical skill, or stay off my phone for the duration of someone's presentation. This was my third @recoverwithmeda conference, though, and each year I've felt more and more accommodated and less pressure to mask. The fact that three separate proposals for talks on supporting neurodivergent clients (including mine and @therapywithjocelyn's on autistic food culture), were accepted alone is a sign of the changing times. The fact that I could stim freely while wearing my Uncrustables spirit jersey and Joce could hold their Squishmallow; the fidget-sharing and info-dumping circle of professionals that assembled after the radical ND self-care talk on the hotel lobby floor; the absence of a single comment about treating or eradicating autism - these are just a few signs of the changing landscape of eating disorder treatment. I feel hopeful, which is something I worry doesn't come across when I repost troubling ableist and fatphobic rhetoric on my stories. To be clear, organizations can and still do need to do better, and calling them in is how that happens, but as @heysharonmaxwell and @bodyjustice.therapist spoke about in their talk, if clinicians can't hold hope for clients' recoveries, how can we expect anyone to move forward? Balance is not a natural strength for many AuDHDers; it's something I personally have to manually locate internally every day, and it takes a lot of spoons, but I'm walking away with a renewed motivation to try.

*typo on slide 3: should say "justice-based" exposure therapy (a very cool concept, btw)

#EDTreatment #Neurodiversity #ActuallyAutistic

Of course my love of categorizing and labeling things drove me to ask this question: Are there TYPES of pattern recognition?? Surely it can't all be lumped together in the way that you're either "good at patterns" or you're not, and some people must excel at some over others, given what we know about spiky profiles.

Okay, maybe I was also inspired in part by a conversation with my partner in which I realized the facial and verbal micro-expressions (abstract patterns) that guide my decisions about when to bring up topics I know will be sensitive because of past experiences (predictive patterns) are not obvious to him. Likewise, when I yelled "plot twist!" at the end of a movie we were watching, he incorrectly assumed I was being sarcastic because it was so predictable to him (associative patterns), this shed more light on the ways in which pattern recognition is a very broad term for a very nuanced thing! I also felt curious about how this shows up as we're establishing and maintaining our relationships with food and our bodies.

#Neurodiversity #PatternRecognition #PatternSeeking #EDRecovery

Of course my love of categorizing and labeling things drove me to ask this question: Are there TYPES of pattern recognition?? Surely it can't all be lumped together in the way that you're either "good at patterns" or you're not, and some people must excel at some over others, given what we know about spiky profiles.

Okay, maybe I was also inspired in part by a conversation with my partner in which I realized the facial and verbal micro-expressions (abstract patterns) that guide my decisions about when to bring up topics I know will be sensitive because of past experiences (predictive patterns) are not obvious to him. Likewise, when I yelled "plot twist!" at the end of a movie we were watching, he incorrectly assumed I was being sarcastic because it was so predictable to him (associative patterns), this shed more light on the ways in which pattern recognition is a very broad term for a very nuanced thing! I also felt curious about how this shows up as we're establishing and maintaining our relationships with food and our bodies.

#Neurodiversity #PatternRecognition #PatternSeeking #EDRecovery

Rather than "just think differently about your situation, and you'll feel better," I am suggesting that if your brain is already wired this way anyway, why not make it work for you?

Let this post be the best-case-scenario, my hope for us all, with the caveat that those cons will often outweigh the pros, that when a feeling is present it may seem like it's always going to be present, and that other aspects of being neurodivergent may make override the benefits discussed here. There's nothing foolproof to this, it's not a "hack," and this isn't toxic positivity. It's just an opportunity to feel good about one of the few ways ADHDers may actually be at an advantage in recovery...when you're a neurominority used to working harder to get to the same place as the majority, that's worth celebrating.

#Neurodiversity #EDRecovery #ObjectPermanence #ADHD

Rather than "just think differently about your situation, and you'll feel better," I am suggesting that if your brain is already wired this way anyway, why not make it work for you?

Let this post be the best-case-scenario, my hope for us all, with the caveat that those cons will often outweigh the pros, that when a feeling is present it may seem like it's always going to be present, and that other aspects of being neurodivergent may make override the benefits discussed here. There's nothing foolproof to this, it's not a "hack," and this isn't toxic positivity. It's just an opportunity to feel good about one of the few ways ADHDers may actually be at an advantage in recovery...when you're a neurominority used to working harder to get to the same place as the majority, that's worth celebrating.

#Neurodiversity #EDRecovery #ObjectPermanence #ADHD

An invitation to look critically at our language and remember that what one person finds supportive another may not. This is not a call to stop using affirmations that feel helpful but rather to reconsider them as axioms.

What if instead of it being "okay" and "fine" to eat ~insert societally demonized convenience and/or preferred food here~ it was celebrated? What if instead of my evening routine of pack of Gushers before bed being forgivable since I'm autistic and you understand that autistic people find routine regulating, it was more akin to the value you find in another person's chamomile tea before bed? Neutral to positive.

I hear a lot of very well-meaning and neurodiversity-affirming providers call for diet culture to go easy on the neurodivergent ones. That is, "if all they can manage to eat for lunch is an Uncrustable, that's better than nothing!" It's a step up from being shamed, for sure, but given that the triple venn diagram of people with eating disorders, ADHDers and autistic folks, and perfectionists is nearly a circle (for all kinds of trauma and masking-related reasons as well as an inherent predisposition for some), the drive to do better than just "good enough" is STRONG, the shame when we can't is high, and the willingness to push through pain (e.g. endure sensory distress) to get there is a major risk to our wellbeing. Think of it like the phrase "Your anxiety about eating will hurt you more than pizza will." The implication is that pizza will in fact hurt you. Why get hurt a little when you could avoid getting hurt at all? A perfectionist is not reassured by this; a perfectionist sees a challenge - the kind that can trigger and exacerbate eating disorders.

This line of thinking was inspired by Oliver Burkeman's "The Imperfectionist" newsletter on doing 70% instead of 100%. Shoutout to the person who share it with me!

An invitation to look critically at our language and remember that what one person finds supportive another may not. This is not a call to stop using affirmations that feel helpful but rather to reconsider them as axioms.

What if instead of it being "okay" and "fine" to eat ~insert societally demonized convenience and/or preferred food here~ it was celebrated? What if instead of my evening routine of pack of Gushers before bed being forgivable since I'm autistic and you understand that autistic people find routine regulating, it was more akin to the value you find in another person's chamomile tea before bed? Neutral to positive.

I hear a lot of very well-meaning and neurodiversity-affirming providers call for diet culture to go easy on the neurodivergent ones. That is, "if all they can manage to eat for lunch is an Uncrustable, that's better than nothing!" It's a step up from being shamed, for sure, but given that the triple venn diagram of people with eating disorders, ADHDers and autistic folks, and perfectionists is nearly a circle (for all kinds of trauma and masking-related reasons as well as an inherent predisposition for some), the drive to do better than just "good enough" is STRONG, the shame when we can't is high, and the willingness to push through pain (e.g. endure sensory distress) to get there is a major risk to our wellbeing. Think of it like the phrase "Your anxiety about eating will hurt you more than pizza will." The implication is that pizza will in fact hurt you. Why get hurt a little when you could avoid getting hurt at all? A perfectionist is not reassured by this; a perfectionist sees a challenge - the kind that can trigger and exacerbate eating disorders.

This line of thinking was inspired by Oliver Burkeman's "The Imperfectionist" newsletter on doing 70% instead of 100%. Shoutout to the person who share it with me!

***FINAL UPDATE*** We have expanded the format of the group to have no cap and will section it into two halves - one large group discussion space and the second for small breakout groups for specific case consultations - the time selected by popular vote is 2/11 10-11:15am Pacific! Registrations accepted up to the day before with follow-up email sent out within 2 days.

**UPDATE: Whew, there’s been way more interest than anticipated, which is wonderful to see! We’ll be in touch with those who have registered or are still registering ASAP about scheduling and may not be able to get everyone interested in, though rather than cap attendees, we may open up a set number of consult slots. We both see professional clients for 1:1 consultation in between groups, so feel free to reach out in the meantime.**

Calling all eating disorder providers who work with autistic and ADHD adult and adolescent clients in any capacity! Regardless of whether you specialize in this niche, have a current case you're seeking support on, or just want to learn and/or brainstorm ideas about how ED care can be more affirming for all neurotypes, you're invited to the free consult group we are hosting next month.

Registration will be capped at the first 8 sign-ups to ensure space for all to share. Open to all disciplines in any location.

https://autonomousmindstherapy.com/consultation-group

***FINAL UPDATE*** We have expanded the format of the group to have no cap and will section it into two halves - one large group discussion space and the second for small breakout groups for specific case consultations - the time selected by popular vote is 2/11 10-11:15am Pacific! Registrations accepted up to the day before with follow-up email sent out within 2 days.

**UPDATE: Whew, there’s been way more interest than anticipated, which is wonderful to see! We’ll be in touch with those who have registered or are still registering ASAP about scheduling and may not be able to get everyone interested in, though rather than cap attendees, we may open up a set number of consult slots. We both see professional clients for 1:1 consultation in between groups, so feel free to reach out in the meantime.**

Calling all eating disorder providers who work with autistic and ADHD adult and adolescent clients in any capacity! Regardless of whether you specialize in this niche, have a current case you're seeking support on, or just want to learn and/or brainstorm ideas about how ED care can be more affirming for all neurotypes, you're invited to the free consult group we are hosting next month.

Registration will be capped at the first 8 sign-ups to ensure space for all to share. Open to all disciplines in any location.

https://autonomousmindstherapy.com/consultation-group

*REPOST WITH HIGHER CONTRAST* Sorry for the accessibility oversight!

*****
If you’ve ever been taken aback by the leisurely, unhurried pace of the staff at a restaurant that values quality of the experience over turning around tables, you might be someone who a) has adapted to capitalism and b) has come to value getting the most “bang for your buck,” so to speak.

Most of the late-discovered ADHD and autistic folks I work with have some level of insecurity about the speed at which they get things done. It makes sense, given inherent traits that create barriers to the efficiency that is so culturally prized: delayed processing, attention regulation challenges, monotropic interests, bottom-up cognition that requires us to have all the info to get to a conclusion, and executive functioning differences that usually go unaccommodated in workplaces, lest it cut into a company’s bottom line, and in the educational settings where we grow up, lest someone get a “leg up” who doesn’t actually need it (tone: sarcastic, annoyed). Additionally, the pursuit of thinness in service to taking up as little space as possible to "compensate" for barriers to efficiency we simply can't do anything about, can serve as a mask. That is, "I am taking up too much space here, but I make up for it over here."

This is not to say that an individual only comes to appreciate efficiency as a result of ableism and adversity! There is certainly something pleasing about the puzzle that is trying to fit the most amount of things into the least amount of space. Neurodivergent brains often thrive on challenges like this, and the dopamine hit from solving a problem can keep us coming back for more by implementing similar strategies into our routines and making a lifestyle out of optimization. While this is positively reinforced by society at large in the way that weight loss is praised even if it’s harmful to an individual, it’s not fair to swing the pendulum to the other side and dismiss it as a symptom of a mental illness, either. If you’re someone who appreciates efficiency and optimization, how do you balance this with the abundance and slowness that is sometimes a necessary part of self-care?

*REPOST WITH HIGHER CONTRAST* Sorry for the accessibility oversight!

*****
If you’ve ever been taken aback by the leisurely, unhurried pace of the staff at a restaurant that values quality of the experience over turning around tables, you might be someone who a) has adapted to capitalism and b) has come to value getting the most “bang for your buck,” so to speak.

Most of the late-discovered ADHD and autistic folks I work with have some level of insecurity about the speed at which they get things done. It makes sense, given inherent traits that create barriers to the efficiency that is so culturally prized: delayed processing, attention regulation challenges, monotropic interests, bottom-up cognition that requires us to have all the info to get to a conclusion, and executive functioning differences that usually go unaccommodated in workplaces, lest it cut into a company’s bottom line, and in the educational settings where we grow up, lest someone get a “leg up” who doesn’t actually need it (tone: sarcastic, annoyed). Additionally, the pursuit of thinness in service to taking up as little space as possible to "compensate" for barriers to efficiency we simply can't do anything about, can serve as a mask. That is, "I am taking up too much space here, but I make up for it over here."

This is not to say that an individual only comes to appreciate efficiency as a result of ableism and adversity! There is certainly something pleasing about the puzzle that is trying to fit the most amount of things into the least amount of space. Neurodivergent brains often thrive on challenges like this, and the dopamine hit from solving a problem can keep us coming back for more by implementing similar strategies into our routines and making a lifestyle out of optimization. While this is positively reinforced by society at large in the way that weight loss is praised even if it’s harmful to an individual, it’s not fair to swing the pendulum to the other side and dismiss it as a symptom of a mental illness, either. If you’re someone who appreciates efficiency and optimization, how do you balance this with the abundance and slowness that is sometimes a necessary part of self-care?

A few weeks ago I went to a vegan food festival I’d been excited for for a long time - I love fake meat, and the expense, labor, and availability are barriers to enjoying it often. Therefore, I went in knowing the stakes were high for me to choose the exact right thing (in contrast to an eating disorder mindset, in which the stakes might be high because I am only “allowing” this food for a special occasion that will eventually end). I spent about a half hour going from booth to booth looking at all the options and processing them through my mental algorithm, considering the bang for my buck, my texture and temperature preferences, and what’s available at other times, with the intention of choosing the meal that would make this infrequent experience most memorable (I enjoyed this process - there was some decision anxiety, but in an eating disorder headspace, it might have overwhelmed me without any benefits). I settled on a sandwich that was my favorite in college and I haven’t seen since. When I took a bite, my heart sank, and I felt devastated by the difference between what I was expecting and what I got. It was just okay. “Devastation” may seem extreme, perhaps even disordered, to someone who hasn’t had a similar experience. But it’s not for me. And yet, if given a do-over, I would not change anything about the expectations I set or my process of preparing because they brought me joy and excitement, regardless of my lack of control over the outcome. The sandwich was tolerable, though not my favorite, so I finished it, and had it not been tolerable, I would’ve planned on eating a preferred food when I got home and felt more regulated. In my eating disorder, though, I might’ve responded by throwing it out and deciding that this experience was the universe telling me I wasn’t meant to eat, and I would’ve let my emotions dictate how I showed up for my body.

I have encountered both of these experiences many times as both client and clinician. When I worked in a treatment center, I was tasked with facilitating exposure work around what was assumed to be food perfectionism by enforcing rules on grocery shopping outings...(SEE CAPTION CONTINUED IN COMMENTS)

A few weeks ago I went to a vegan food festival I’d been excited for for a long time - I love fake meat, and the expense, labor, and availability are barriers to enjoying it often. Therefore, I went in knowing the stakes were high for me to choose the exact right thing (in contrast to an eating disorder mindset, in which the stakes might be high because I am only “allowing” this food for a special occasion that will eventually end). I spent about a half hour going from booth to booth looking at all the options and processing them through my mental algorithm, considering the bang for my buck, my texture and temperature preferences, and what’s available at other times, with the intention of choosing the meal that would make this infrequent experience most memorable (I enjoyed this process - there was some decision anxiety, but in an eating disorder headspace, it might have overwhelmed me without any benefits). I settled on a sandwich that was my favorite in college and I haven’t seen since. When I took a bite, my heart sank, and I felt devastated by the difference between what I was expecting and what I got. It was just okay. “Devastation” may seem extreme, perhaps even disordered, to someone who hasn’t had a similar experience. But it’s not for me. And yet, if given a do-over, I would not change anything about the expectations I set or my process of preparing because they brought me joy and excitement, regardless of my lack of control over the outcome. The sandwich was tolerable, though not my favorite, so I finished it, and had it not been tolerable, I would’ve planned on eating a preferred food when I got home and felt more regulated. In my eating disorder, though, I might’ve responded by throwing it out and deciding that this experience was the universe telling me I wasn’t meant to eat, and I would’ve let my emotions dictate how I showed up for my body.

I have encountered both of these experiences many times as both client and clinician. When I worked in a treatment center, I was tasked with facilitating exposure work around what was assumed to be food perfectionism by enforcing rules on grocery shopping outings...(SEE CAPTION CONTINUED IN COMMENTS)

ADHD boredom is often misunderstood and stigmatized as the lower-intensity emotion those with typical dopamine reserves expect it to be and one that children eventually grow out of. In fact, it's not uncommon for one's ability to endure boredom to be perceived as virtuous and for the things we do to cope with boredom to be assigned negative moral value. Remember when that trend of people staring at the seat in front of them on long flights was hailed as a demonstration of "self-control" earlier this year? Are those of us who pack a minimum of one activity per hour on a flight are "out of control" then? EDs promise control.

Boredom isn't experienced equally for everyone, and while life hacks, systems, and structure can make it more tolerable for those who struggle with understimulation on a wide-open plans-free day, when we experience this chronically and at a high intensity without support or effective coping mechanisms, zooming out and considering where we're going in life and why we do the things we do might leave us feeling empty and frustrated. The inspiration for this post came from my experience forgetting to take my stimulant meds on a Sunday recently and turning down dozens of suggestions for things to do because they all sounded unfulfilling, followed by panic that nothing would ever feel stimulating enough again. "Wow," I thought, when reflecting on the experience the next day, back on my meds. "That was a lot like how food feels sometimes." It wasn't a lack of interest or motivation, and it couldn't be overcome with logic. It wasn't mild discomfort; it was desperation without reprieve. And I started to wonder why, amongst all the emotion wheels and socioemotional education, the only coping skill I've ever heard for boredom is "find something to do" or "sit with it" (to paraphrase an adage from childhood: "If you're bored, you're boring"). No wonder we ADHDers, ever creative, learn to use food and conflict and risk-taking and art and animals and sports and other adrenaline-pumping activities to match the energy of the urgency we feel, at times even becoming dependent on the activity and then tending to our dependence.

#AdultADHD #neurodiversity

ADHD boredom is often misunderstood and stigmatized as the lower-intensity emotion those with typical dopamine reserves expect it to be and one that children eventually grow out of. In fact, it's not uncommon for one's ability to endure boredom to be perceived as virtuous and for the things we do to cope with boredom to be assigned negative moral value. Remember when that trend of people staring at the seat in front of them on long flights was hailed as a demonstration of "self-control" earlier this year? Are those of us who pack a minimum of one activity per hour on a flight are "out of control" then? EDs promise control.

Boredom isn't experienced equally for everyone, and while life hacks, systems, and structure can make it more tolerable for those who struggle with understimulation on a wide-open plans-free day, when we experience this chronically and at a high intensity without support or effective coping mechanisms, zooming out and considering where we're going in life and why we do the things we do might leave us feeling empty and frustrated. The inspiration for this post came from my experience forgetting to take my stimulant meds on a Sunday recently and turning down dozens of suggestions for things to do because they all sounded unfulfilling, followed by panic that nothing would ever feel stimulating enough again. "Wow," I thought, when reflecting on the experience the next day, back on my meds. "That was a lot like how food feels sometimes." It wasn't a lack of interest or motivation, and it couldn't be overcome with logic. It wasn't mild discomfort; it was desperation without reprieve. And I started to wonder why, amongst all the emotion wheels and socioemotional education, the only coping skill I've ever heard for boredom is "find something to do" or "sit with it" (to paraphrase an adage from childhood: "If you're bored, you're boring"). No wonder we ADHDers, ever creative, learn to use food and conflict and risk-taking and art and animals and sports and other adrenaline-pumping activities to match the energy of the urgency we feel, at times even becoming dependent on the activity and then tending to our dependence.

#AdultADHD #neurodiversity

You may be surprised to see a post that includes the words “tough love” coming from two liberation-oriented relational therapists, but we have increasingly felt that nuance is missing from conversations about the changing landscape of ED care, so please read through these slides not as a retraction of all we’ve spoken on previously but an addendum. We do not believe abolition and outsourcing your decision-making are mutually exclusive.

Fellow providers: centering our clients’ needs, wants, capacity, and vision for recovery is not at odds from providing direction. Whether our client would benefit from us drafting a road map or just a gentle reminder to turn right at the light is something that can only be ascertained from ongoing conversations with them in the weeds and the mess of their most vulnerable thoughts that we must earn access to through rapport and trust-building. Sometimes that looks like spending time learning and observing before jumping in to add recommendations or “hard truths.” But it always looks like obtaining consent to share these things first and having conversations about how they land. For example, “Would it be helpful if I email you on Wednesday about that snack you want to challenge yourself to if you don’t text me a picture of it first?” “Can I tell you about what I’ve seen happen in my clinical experience to others who have cut out carbs to the extent you have?” There is a huge difference between these questions and either a) lecturing and scolding or b) “I’ll help you however you want me to, but you have to tell me what that looks like.”

You may be surprised to see a post that includes the words “tough love” coming from two liberation-oriented relational therapists, but we have increasingly felt that nuance is missing from conversations about the changing landscape of ED care, so please read through these slides not as a retraction of all we’ve spoken on previously but an addendum. We do not believe abolition and outsourcing your decision-making are mutually exclusive.

Fellow providers: centering our clients’ needs, wants, capacity, and vision for recovery is not at odds from providing direction. Whether our client would benefit from us drafting a road map or just a gentle reminder to turn right at the light is something that can only be ascertained from ongoing conversations with them in the weeds and the mess of their most vulnerable thoughts that we must earn access to through rapport and trust-building. Sometimes that looks like spending time learning and observing before jumping in to add recommendations or “hard truths.” But it always looks like obtaining consent to share these things first and having conversations about how they land. For example, “Would it be helpful if I email you on Wednesday about that snack you want to challenge yourself to if you don’t text me a picture of it first?” “Can I tell you about what I’ve seen happen in my clinical experience to others who have cut out carbs to the extent you have?” There is a huge difference between these questions and either a) lecturing and scolding or b) “I’ll help you however you want me to, but you have to tell me what that looks like.”

What I am NOT saying is that “everyone’s a little autistic.” And I choose autism as an example because this microaggression is the one I see most commonly clapped back against - I am very much not saying neurodivergent identity is confined to autism (or ADHD or even a diagnosis, as that would be counter to the points I’ve made about the medical model in this post) - see @livedexperienceeducator’s Smorgasbord and Umbrella models for more on how ND is defined.

What I am NOT saying is that if you identify with a few TikToks about traits of a personality disorder, you should just take that at face value and start identifying with this label immediately if you want to find peace.

What I am NOT saying is that misdiagnosis can’t harm people, just as missed diagnosis can. Or hey, even accurate diagnosis, depending on how it’s utilized.

But a study published last month in Autism in Adulthood by Brown et al found that “autistic traits predicted elevated ED risk overall,” but “the effect was substantially lower in women with a formal autism diagnosis.” So knowing about your neurodivergence DOES matter. Do the pros outweigh the cons, or vice versa? Well, that’s something everyone must figure out for themselves. That’s part of why this is so damn hard.

What I AM saying is that if you are curious whether you might be neurodivergent and are beginning to explore that, there is a high likelihood that you will never feel one hundred percent sure that you are one hundred percent of the time. This is an invitation to ask “What if that’s okay?” What if you could do the self-discovery and the re-conceptualization of your memories and narratives and forgiveness and grief and all the other emotions enveloped in the whirlwind that is a late diagnosis without that certainty? What’s holding you back? What are you waiting for? If your answer to “Will there ever be enough validation to start doing this work?” is “I don’t know” then consider just starting and seeing what you find. You are not a fraud. You are not watering down other people’s experiences. You are curious. (Caption continued in the comments)

What I am NOT saying is that “everyone’s a little autistic.” And I choose autism as an example because this microaggression is the one I see most commonly clapped back against - I am very much not saying neurodivergent identity is confined to autism (or ADHD or even a diagnosis, as that would be counter to the points I’ve made about the medical model in this post) - see @livedexperienceeducator’s Smorgasbord and Umbrella models for more on how ND is defined.

What I am NOT saying is that if you identify with a few TikToks about traits of a personality disorder, you should just take that at face value and start identifying with this label immediately if you want to find peace.

What I am NOT saying is that misdiagnosis can’t harm people, just as missed diagnosis can. Or hey, even accurate diagnosis, depending on how it’s utilized.

But a study published last month in Autism in Adulthood by Brown et al found that “autistic traits predicted elevated ED risk overall,” but “the effect was substantially lower in women with a formal autism diagnosis.” So knowing about your neurodivergence DOES matter. Do the pros outweigh the cons, or vice versa? Well, that’s something everyone must figure out for themselves. That’s part of why this is so damn hard.

What I AM saying is that if you are curious whether you might be neurodivergent and are beginning to explore that, there is a high likelihood that you will never feel one hundred percent sure that you are one hundred percent of the time. This is an invitation to ask “What if that’s okay?” What if you could do the self-discovery and the re-conceptualization of your memories and narratives and forgiveness and grief and all the other emotions enveloped in the whirlwind that is a late diagnosis without that certainty? What’s holding you back? What are you waiting for? If your answer to “Will there ever be enough validation to start doing this work?” is “I don’t know” then consider just starting and seeing what you find. You are not a fraud. You are not watering down other people’s experiences. You are curious. (Caption continued in the comments)

There's a lot happening underneath the iceberg that providers don't see. This is an invitation to get curious and dig deeper than "they're just not motivated" or are "treatment resistant." If you resonate with some of these barriers, what's been helpful for you in either troubleshooting OR finding an alternative to meal planning and food logging altogether?

#ADHD #EDRecovery #TimeAgnosia #EDTreatment #ExecutiveFunctioning

There's a lot happening underneath the iceberg that providers don't see. This is an invitation to get curious and dig deeper than "they're just not motivated" or are "treatment resistant." If you resonate with some of these barriers, what's been helpful for you in either troubleshooting OR finding an alternative to meal planning and food logging altogether?

#ADHD #EDRecovery #TimeAgnosia #EDTreatment #ExecutiveFunctioning

I’ve had some super interesting conversations lately about the protective nature of “black and white” or “all or nothing” thinking, including the simplification of decision-making and expediting of complex, lengthy processing mechanisms for bottom-up thinkers.

At many points in my own eating disorder, I felt like a “fraud” or that I was doing the ED “wrong” because I was able to make the choice to eat things I was normally scared of without much emotional fallout because it was a special occasion or sometimes even just because I decided I wanted to and was tired enough of the limits the ED placed on me. I’d cycle in and out of these periods of “on” and “off” while providers would use this as evidence to suggest that I was more capable of ~recovery~ than I thought I was when the light switch was back “on”: “You ate that thing last time and it went fine, so you can do it again.” Yes, but that was when the light switch was “off.”

This is the sort of mindset that gets labeled as a cognitive distortion, rigidity, inflexibility…call it what you want, but it’s not irrational, it’s not unreasonable, it’s a divergence from an expected way of thinking, and if it works, it works. My biggest regret knowing what I know now is that when my light switch would turn off, I spent so much time wondering if I was lying about having an ED to begin with that I couldn’t just enjoy the reprieve from anxiety and thought loops.

Of course, not having any “yellow flags” that the ED is re-emerging leading up to it precludes us from “coping ahead” or doing any prevention work, and that’s terrifying - the sense of loss of control is fear come to fruition - but it is made worse when those around us question the validity of the ED, question whether we simply made a choice or worse, are being “manipulative,” as affirmations like the one above are only afforded to those whose ED presents in a slower, gradual and predictable, thus more sympathetic, manner.

Additionally we don’t have to “wait for the other shoe to drop” just because it has before (easier said than done, for sure).

I’ve had some super interesting conversations lately about the protective nature of “black and white” or “all or nothing” thinking, including the simplification of decision-making and expediting of complex, lengthy processing mechanisms for bottom-up thinkers.

At many points in my own eating disorder, I felt like a “fraud” or that I was doing the ED “wrong” because I was able to make the choice to eat things I was normally scared of without much emotional fallout because it was a special occasion or sometimes even just because I decided I wanted to and was tired enough of the limits the ED placed on me. I’d cycle in and out of these periods of “on” and “off” while providers would use this as evidence to suggest that I was more capable of ~recovery~ than I thought I was when the light switch was back “on”: “You ate that thing last time and it went fine, so you can do it again.” Yes, but that was when the light switch was “off.”

This is the sort of mindset that gets labeled as a cognitive distortion, rigidity, inflexibility…call it what you want, but it’s not irrational, it’s not unreasonable, it’s a divergence from an expected way of thinking, and if it works, it works. My biggest regret knowing what I know now is that when my light switch would turn off, I spent so much time wondering if I was lying about having an ED to begin with that I couldn’t just enjoy the reprieve from anxiety and thought loops.

Of course, not having any “yellow flags” that the ED is re-emerging leading up to it precludes us from “coping ahead” or doing any prevention work, and that’s terrifying - the sense of loss of control is fear come to fruition - but it is made worse when those around us question the validity of the ED, question whether we simply made a choice or worse, are being “manipulative,” as affirmations like the one above are only afforded to those whose ED presents in a slower, gradual and predictable, thus more sympathetic, manner.

Additionally we don’t have to “wait for the other shoe to drop” just because it has before (easier said than done, for sure).

I am a person who tends to run under-stimulated…until suddenly I don’t anymore. Part of my unmasking work has been to notice and interrupt my constant self-monitoring of my innately narrow window of ideal stimulation to ensure I don’t fall “out of range” and instead trust myself to up- or down-regulate when I need to. The only time this fails me is the rare occasion on which I over-shoot my input in an attempt to stave off intolerable boredom (thanks, ADHD) and wind up over-stimulated. It’s a lot harder to come down from a meltdown or shutdown than it is to come up from task paralysis, mostly because of the social implications of the former and the “explaining” I have to do, whereas I can mask under-stimulation pretty well.

All this to say, there is privilege in leaning toward stimulation-seeking more than stimulation-avoiding, and I am also increasingly susceptible to internalized narratives from the world around me about my need to “be careful” about how I up-regulate, lest it be to the detriment of myself or the inconvenience of others.

In my eating disorder, I’ve harbored the “secret” that despite a prescribed meal plan and nutrition education up the wazoo, I felt I would never be truly satisfied - a bottomless pit - and that every amount of “allowed” food felt restrictive. This contributed to shame about nothing “working” and doing recovery “wrong.”

Hot take: while ADHDers are more likely to meet clinical criteria for binge eating disorder for this reason, I believe eating to stim is not inherently disordered and only looks like BED from the outside in (parallel to ARFID looking like anorexia if we don’t ask the right questions). Binge eating is, similarly, tied to trying to meet an unmet emotional need via food. However, stimulation is not emotional alone - many neurodivergent brains have a physiological NEED to stim that we can’t out-think (I’m looking at you, CBT) - and what meets that need is as unique as our fingerprints. Prescribing stretching or TikTok or hanging out with friends to someone whose gustatory sensory system is hypo-sensitive to prevent them from “bingeing” is akin to recommending (caption continued in comments!)

I am a person who tends to run under-stimulated…until suddenly I don’t anymore. Part of my unmasking work has been to notice and interrupt my constant self-monitoring of my innately narrow window of ideal stimulation to ensure I don’t fall “out of range” and instead trust myself to up- or down-regulate when I need to. The only time this fails me is the rare occasion on which I over-shoot my input in an attempt to stave off intolerable boredom (thanks, ADHD) and wind up over-stimulated. It’s a lot harder to come down from a meltdown or shutdown than it is to come up from task paralysis, mostly because of the social implications of the former and the “explaining” I have to do, whereas I can mask under-stimulation pretty well.

All this to say, there is privilege in leaning toward stimulation-seeking more than stimulation-avoiding, and I am also increasingly susceptible to internalized narratives from the world around me about my need to “be careful” about how I up-regulate, lest it be to the detriment of myself or the inconvenience of others.

In my eating disorder, I’ve harbored the “secret” that despite a prescribed meal plan and nutrition education up the wazoo, I felt I would never be truly satisfied - a bottomless pit - and that every amount of “allowed” food felt restrictive. This contributed to shame about nothing “working” and doing recovery “wrong.”

Hot take: while ADHDers are more likely to meet clinical criteria for binge eating disorder for this reason, I believe eating to stim is not inherently disordered and only looks like BED from the outside in (parallel to ARFID looking like anorexia if we don’t ask the right questions). Binge eating is, similarly, tied to trying to meet an unmet emotional need via food. However, stimulation is not emotional alone - many neurodivergent brains have a physiological NEED to stim that we can’t out-think (I’m looking at you, CBT) - and what meets that need is as unique as our fingerprints. Prescribing stretching or TikTok or hanging out with friends to someone whose gustatory sensory system is hypo-sensitive to prevent them from “bingeing” is akin to recommending (caption continued in comments!)

As more and more treatment centers cling to the demand for neurodiversity-affirming eating disorder care and claim to be autism-affirming, the talk seems to be a whole lot of “headphones at the table” and “emphasizing strengths over deficits” (good things, for sure!), while I’ve yet to hear any talk about how they conceptualize and support their autistic clients through the less palatable experiences of autism, the ones that have historically traumatized, deflated, and shaken our worth because of how those in our lives have responded over the course of a lifetime (or, because of the impact of having suppressed or masked them for the sake of safety, if we had that privilege). How are treatment centers educating their staff and ensuring old relational patterns are not re-enacted, that clients aren’t getting further validation that even in a supposedly safe space, they are “too much”, bad, wrong, etc.? I want to hear about providers going beyond “autism is a superpower.” I want to hear that you are prepared to be inconvenienced, that you aren’t going to blame or abandon or incarcerate the person in an incredibly vulnerable moment, that you are going to give them the benefit of the doubt, that you are going to support their support people in making a plan for when these meltdowns or shutdowns continue at home rather than setting the unrealistic goal of eradicating them or telling them that once they’re more nourished it won’t be a problem anymore. I want to know where I can send clients with all kinds of support needs, with fluctuating support needs, with support needs that will always be there who don’t have an interest and/or ability in needing less support but still deserve to work toward eating disorder recovery.

#NeurodiversityAffirming #EatingDisorderTreatment #EatingDisorderRecovery #AutismAcceptance #Meltdowns #shutdowns

As more and more treatment centers cling to the demand for neurodiversity-affirming eating disorder care and claim to be autism-affirming, the talk seems to be a whole lot of “headphones at the table” and “emphasizing strengths over deficits” (good things, for sure!), while I’ve yet to hear any talk about how they conceptualize and support their autistic clients through the less palatable experiences of autism, the ones that have historically traumatized, deflated, and shaken our worth because of how those in our lives have responded over the course of a lifetime (or, because of the impact of having suppressed or masked them for the sake of safety, if we had that privilege). How are treatment centers educating their staff and ensuring old relational patterns are not re-enacted, that clients aren’t getting further validation that even in a supposedly safe space, they are “too much”, bad, wrong, etc.? I want to hear about providers going beyond “autism is a superpower.” I want to hear that you are prepared to be inconvenienced, that you aren’t going to blame or abandon or incarcerate the person in an incredibly vulnerable moment, that you are going to give them the benefit of the doubt, that you are going to support their support people in making a plan for when these meltdowns or shutdowns continue at home rather than setting the unrealistic goal of eradicating them or telling them that once they’re more nourished it won’t be a problem anymore. I want to know where I can send clients with all kinds of support needs, with fluctuating support needs, with support needs that will always be there who don’t have an interest and/or ability in needing less support but still deserve to work toward eating disorder recovery.

#NeurodiversityAffirming #EatingDisorderTreatment #EatingDisorderRecovery #AutismAcceptance #Meltdowns #shutdowns

On Liberation Lunch (Taylor’s Version), we unpacked themes of carcerality, religious trauma, and white feminism in The Tortured Poets Department, not to mention the notable absence of queer themes and cat references 🤔 and asked the question “Is a billionaire with a big platform ethically obligated to show up a certain way for the public?” (not unlike previous conversations of managed care’s ethical obligations to consumers, though we did not get into that today). We also discussed externalization of eating disorders in music (whether any breakup song is ED-recovery-coded). Pictured: $5 squeezy brain from Five Below.

On Liberation Lunch (Taylor’s Version), we unpacked themes of carcerality, religious trauma, and white feminism in The Tortured Poets Department, not to mention the notable absence of queer themes and cat references 🤔 and asked the question “Is a billionaire with a big platform ethically obligated to show up a certain way for the public?” (not unlike previous conversations of managed care’s ethical obligations to consumers, though we did not get into that today). We also discussed externalization of eating disorders in music (whether any breakup song is ED-recovery-coded). Pictured: $5 squeezy brain from Five Below.

Join two AuDHD therapists for an unpacking of The Tortured Poets Department through an anti-oppressive lens (disclaimer: we are not Taylor apologists, harm will be named, you can come for us it’s fine), but also probably some discussion of things that actually matter re: EDs - you decide, show up in the comments, get your meal support, and engage with like-minded comrades.

Join two AuDHD therapists for an unpacking of The Tortured Poets Department through an anti-oppressive lens (disclaimer: we are not Taylor apologists, harm will be named, you can come for us it’s fine), but also probably some discussion of things that actually matter re: EDs - you decide, show up in the comments, get your meal support, and engage with like-minded comrades.

As Taylor Swift says, “I have this thing where I get older but just never wiser.” ADHDers will more often than not relate, in my experience. We know the years are passing, technically, logically, but the content filling those years is challenging to assess as adequate, above or below expectations (ours and others’). We may never quite know where we stand in time. This is a major piece of why I find depth psychology and existential approaches to be so fulfilling for many of my ADHD clients. Those of us who experience time non-linearly and as a construct in a world that requires us to function opposite of this, we must grieve.

Additionally, the linear experience of time can be devastating to the ADHD brain in that it is infinite. There will never be enough stimulation to fill it. Anything can happen within it. It’s outside our control. Not a fan. Eating disorders may interact with this reality by creating structure for us via rules like how many hours we must go between meals or that we must try to go for as long as possible without eating to gain a sense of power over the limitlessness of time. Conversely, they may take a more nihilistic approach, a la “None of it matters, I’ll never fill it up completely, there isn’t enough structure in the world, but eating makes it pass faster.”

Most of the discourse I see around ADHD and time is in regards to “managing” it, not perceiving it. The two go hand-in-hand, they’re not separate. How we perceive time impacts our ability to use it the way we’d like to or others would like us to. And the shame that pops up when we cannot do so can be coped with via an ED, too.

#EatingDisorderRecovery #ADHD #AdultADHD #Neurodiversity #NeurodivergentAffirming #Neuronormativity

As Taylor Swift says, “I have this thing where I get older but just never wiser.” ADHDers will more often than not relate, in my experience. We know the years are passing, technically, logically, but the content filling those years is challenging to assess as adequate, above or below expectations (ours and others’). We may never quite know where we stand in time. This is a major piece of why I find depth psychology and existential approaches to be so fulfilling for many of my ADHD clients. Those of us who experience time non-linearly and as a construct in a world that requires us to function opposite of this, we must grieve.

Additionally, the linear experience of time can be devastating to the ADHD brain in that it is infinite. There will never be enough stimulation to fill it. Anything can happen within it. It’s outside our control. Not a fan. Eating disorders may interact with this reality by creating structure for us via rules like how many hours we must go between meals or that we must try to go for as long as possible without eating to gain a sense of power over the limitlessness of time. Conversely, they may take a more nihilistic approach, a la “None of it matters, I’ll never fill it up completely, there isn’t enough structure in the world, but eating makes it pass faster.”

Most of the discourse I see around ADHD and time is in regards to “managing” it, not perceiving it. The two go hand-in-hand, they’re not separate. How we perceive time impacts our ability to use it the way we’d like to or others would like us to. And the shame that pops up when we cannot do so can be coped with via an ED, too.

#EatingDisorderRecovery #ADHD #AdultADHD #Neurodiversity #NeurodivergentAffirming #Neuronormativity

If you know me, you know I am not a platitudes person. When someone says something idealistic, I tend to ask for proof. So I offer these pieces of reassurance I've sincerely offered to others recently after years of pushing them away for myself as a gift on world autism day - take what feels like it's for you. Affirmations don't have to promise sunshine and rainbows will come; they can just be a pause button or a dimmer switch on your internal assholery :P

If you know me, you know I am not a platitudes person. When someone says something idealistic, I tend to ask for proof. So I offer these pieces of reassurance I've sincerely offered to others recently after years of pushing them away for myself as a gift on world autism day - take what feels like it's for you. Affirmations don't have to promise sunshine and rainbows will come; they can just be a pause button or a dimmer switch on your internal assholery :P

When considering what participation in eating disorder awareness week would be most meaningful, we decided it would be values-aligned to sidestep statistics and fundraising that already exists in abundance to instead talk about an area of ED care that often goes overlooked and misconceived in neurodivergent folks. In bringing ~awareness~ to affirming ways to support those with hyper- and hypo-sensitivity to their internal cues, we hope to reach clinicians who feel stuck and folks who have long thought their bodies were the problem.

When considering what participation in eating disorder awareness week would be most meaningful, we decided it would be values-aligned to sidestep statistics and fundraising that already exists in abundance to instead talk about an area of ED care that often goes overlooked and misconceived in neurodivergent folks. In bringing ~awareness~ to affirming ways to support those with hyper- and hypo-sensitivity to their internal cues, we hope to reach clinicians who feel stuck and folks who have long thought their bodies were the problem.

I have hosted a handful of iterations of this support group over the past couple of years - paid vs. free vs. exclusive to Patreon, weekly vs. biweekly vs. monthly, all neurodivergent vs. only autistic participants, drop-in vs. closed and time-limited, therapy-style facilitation vs. peer support. And what I've learned is that needs fluctuate. What people want in a supportive hour with community will be different from month to month, as will their capacity to engage and my own.

I have juggled the desire to make the group accessible by not requiring RSVPs that can feel like a demand with the difficulty of holding space for just a couple people at a time, especially those who expected there to be more people so they wouldn't have to be as perceived. So I'm at a point now where holding the group space still feels incredibly important, and I'm out of spoons to invest in structured facilitation. When a lived experience therapist offers support with their peer hat on, it gets tricky because folks know I'm a therapist, so there is an implicit power dynamic as much as I can say I don't want there to be, no matter how much disclosure and stepping back I try to do.

All this said, I'd LOVE to have more folks pop in even just once to see how it feels. Please know the following:

-I will be eating, so if you need a space to body double with food this is it, and if being in a space with people eating is hard but you still want to attend, you can try turning your screen away and participating via audio only.

-I will continue to do whatever I can to make accommodations not just available but a norm. But I won't always get it right.

-The focus is on community discussion and/or just having a space to vent, so I will respond empathetically as a fellow human but I won't challenge you or reflect patterns as a therapist might. It might feel awkward. There will be silence sometimes. It's ok :)

-You never know how many or how few people will show up, but you're not responsible for staying in the group if you're uncomfortable with the numbers just to keep it going.

-You can review the guidelines/structure ahead at staciefanelli.com/support group

I have hosted a handful of iterations of this support group over the past couple of years - paid vs. free vs. exclusive to Patreon, weekly vs. biweekly vs. monthly, all neurodivergent vs. only autistic participants, drop-in vs. closed and time-limited, therapy-style facilitation vs. peer support. And what I've learned is that needs fluctuate. What people want in a supportive hour with community will be different from month to month, as will their capacity to engage and my own.

I have juggled the desire to make the group accessible by not requiring RSVPs that can feel like a demand with the difficulty of holding space for just a couple people at a time, especially those who expected there to be more people so they wouldn't have to be as perceived. So I'm at a point now where holding the group space still feels incredibly important, and I'm out of spoons to invest in structured facilitation. When a lived experience therapist offers support with their peer hat on, it gets tricky because folks know I'm a therapist, so there is an implicit power dynamic as much as I can say I don't want there to be, no matter how much disclosure and stepping back I try to do.

All this said, I'd LOVE to have more folks pop in even just once to see how it feels. Please know the following:

-I will be eating, so if you need a space to body double with food this is it, and if being in a space with people eating is hard but you still want to attend, you can try turning your screen away and participating via audio only.

-I will continue to do whatever I can to make accommodations not just available but a norm. But I won't always get it right.

-The focus is on community discussion and/or just having a space to vent, so I will respond empathetically as a fellow human but I won't challenge you or reflect patterns as a therapist might. It might feel awkward. There will be silence sometimes. It's ok :)

-You never know how many or how few people will show up, but you're not responsible for staying in the group if you're uncomfortable with the numbers just to keep it going.

-You can review the guidelines/structure ahead at staciefanelli.com/support group

We are not exempt from the same underlying issues as anyone else, AND our experiences with ableism (external and internalized), ND-specific trauma, perception of the world, etc. must be factored into clinical conceptualization of treatment. Neurodivergent-affirming providers use an intersectional lens, which means sometimes it's the same stuff anyone else in front of you asking for support is going to need, and sometimes it's not. Exploring all possibilities is crucial. For example, if I'm using an eating disorder to numb intense emotions and my provider assumes that because I'm autistic, the target of our work should be meltdown prevention, what other useful tools might I be missing out on that they'd use for anyone else? This is one way virtue signaling with the ND-affirming label impedes effective care. If my ED helps me trust myself because the world has taught me I'm not trustworthy as a result of my ADHD traits, then challenging ableism will enter into the conversations had in therapy, self-acceptance will be a piece of the work, but what do we do for folks without ADHD who struggle to trust themselves? And what other reasons might I have internalized that I'm not trustworthy? I want those conversations TOO. Let's not be so quick to pin the eating disorder on the neurotype entirely. Instead, offering equitable treatment is truly affirming. #AuDHD #EatingDisorderTreatment #EatingDisorderRecovery #Neurodivergent #ActuallyAutistic

We are not exempt from the same underlying issues as anyone else, AND our experiences with ableism (external and internalized), ND-specific trauma, perception of the world, etc. must be factored into clinical conceptualization of treatment. Neurodivergent-affirming providers use an intersectional lens, which means sometimes it's the same stuff anyone else in front of you asking for support is going to need, and sometimes it's not. Exploring all possibilities is crucial. For example, if I'm using an eating disorder to numb intense emotions and my provider assumes that because I'm autistic, the target of our work should be meltdown prevention, what other useful tools might I be missing out on that they'd use for anyone else? This is one way virtue signaling with the ND-affirming label impedes effective care. If my ED helps me trust myself because the world has taught me I'm not trustworthy as a result of my ADHD traits, then challenging ableism will enter into the conversations had in therapy, self-acceptance will be a piece of the work, but what do we do for folks without ADHD who struggle to trust themselves? And what other reasons might I have internalized that I'm not trustworthy? I want those conversations TOO. Let's not be so quick to pin the eating disorder on the neurotype entirely. Instead, offering equitable treatment is truly affirming. #AuDHD #EatingDisorderTreatment #EatingDisorderRecovery #Neurodivergent #ActuallyAutistic

Loved hanging out with @em.does.therapy for Liberation Lunch! We talked relational therapy, collaboration, self-disclosure, pros and cons of diagnosis, and Diet Coke. Thanks to everyone who showed up in the comments, I love this community 🥰

Loved hanging out with @em.does.therapy for Liberation Lunch! We talked relational therapy, collaboration, self-disclosure, pros and cons of diagnosis, and Diet Coke. Thanks to everyone who showed up in the comments, I love this community 🥰

There is a lot more psychology involved in a full understanding of why ADHDers are prone to worse body image. We can’t boil it down to the reasons we are more susceptible to eating disorders as a whole (e.g. compensation, masking, self-esteem issues, etc.) and just throw in “and EDs come with body image concerns.” Yes, sometimes it’s the chicken first, sometimes it’s the egg. It turns out that object impermanence, low visual memory span, and the resulting difficulty we have perceiving our bodies accurately set us up to have more anxiety and uncertainty about our appearance and thus the holistic Self. We turn to objective measures like the scale and risk spiraling into obsession; we may use ED behaviors “just in case” we’re wrong because we learn we can’t trust our perception. What does recovery look like when neurological differences mean that it’s NOT “just the eating disorder talking”?

Journal article cited on slide 5 re: visuospatial memory and body image: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4338767/

There is a lot more psychology involved in a full understanding of why ADHDers are prone to worse body image. We can’t boil it down to the reasons we are more susceptible to eating disorders as a whole (e.g. compensation, masking, self-esteem issues, etc.) and just throw in “and EDs come with body image concerns.” Yes, sometimes it’s the chicken first, sometimes it’s the egg. It turns out that object impermanence, low visual memory span, and the resulting difficulty we have perceiving our bodies accurately set us up to have more anxiety and uncertainty about our appearance and thus the holistic Self. We turn to objective measures like the scale and risk spiraling into obsession; we may use ED behaviors “just in case” we’re wrong because we learn we can’t trust our perception. What does recovery look like when neurological differences mean that it’s NOT “just the eating disorder talking”?

Journal article cited on slide 5 re: visuospatial memory and body image: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4338767/

I’m in the market for a new therapist. After a consultation call last week in which I explained that somatic modalities are inaccessible to me, the therapist suggested I try CBT (a la “change your thoughts, change your life”). I have in fact seen CBT absolutely rock some first-time therapy attendees’ worlds. But it is not exhaustive, it often doesn’t hit the root of the issue - a band-aid at best - and many neurodivergent folks in particular report that CBT feels very invalidating and exacerbates their problem.

“Talk therapy” has gotten a bad rap in recent years as “bottom-up” body-based modalities like EMDR, somatic experiencing, sensorimotor, mindfulness-based stress reduction, and more have boomed, promising to take you further than “traditional” therapy could ever. And there’s validity to that for many people. And not all. For instance, those of us who have always been alexithymic due to our neurotype cannot connect to emotions supposedly stored in our bodies in the same way others can. But because trauma can be a catalyst to alexithymia, there’s a big push to “restore” this ability deemed a birthright by some clinicians, a promise that adhering to the fidelity of a model will earn us the reward of accessing unchartered (or previously chartered) emotions that we can then release from our bodies, facilitating healing. Maybe. And you can’t really know for sure if that’s you ’til you try. But continuing to try and blaming yourself when it doesn’t work is NOT benign. If you Google “top-down therapies” most of the results are about how bottom-up is the only way to address trauma effectively. Reading this feels similarly to reading the pitying commentary of religious proselytizers who feel they know something you don’t that would save you if only you would open your heart.

What about those of us for whom this is simply NOT true? It’s parallel to telling someone if they keep following their meal plan, they will inevitably feel hunger cues their eating disorder has stolen from them. Okay, but what about the harm caused by this messaging to those for whom this isn’t the case? Those whose brains are just wired differently? (Caption continued in comments)

I’m in the market for a new therapist. After a consultation call last week in which I explained that somatic modalities are inaccessible to me, the therapist suggested I try CBT (a la “change your thoughts, change your life”). I have in fact seen CBT absolutely rock some first-time therapy attendees’ worlds. But it is not exhaustive, it often doesn’t hit the root of the issue - a band-aid at best - and many neurodivergent folks in particular report that CBT feels very invalidating and exacerbates their problem.

“Talk therapy” has gotten a bad rap in recent years as “bottom-up” body-based modalities like EMDR, somatic experiencing, sensorimotor, mindfulness-based stress reduction, and more have boomed, promising to take you further than “traditional” therapy could ever. And there’s validity to that for many people. And not all. For instance, those of us who have always been alexithymic due to our neurotype cannot connect to emotions supposedly stored in our bodies in the same way others can. But because trauma can be a catalyst to alexithymia, there’s a big push to “restore” this ability deemed a birthright by some clinicians, a promise that adhering to the fidelity of a model will earn us the reward of accessing unchartered (or previously chartered) emotions that we can then release from our bodies, facilitating healing. Maybe. And you can’t really know for sure if that’s you ’til you try. But continuing to try and blaming yourself when it doesn’t work is NOT benign. If you Google “top-down therapies” most of the results are about how bottom-up is the only way to address trauma effectively. Reading this feels similarly to reading the pitying commentary of religious proselytizers who feel they know something you don’t that would save you if only you would open your heart.

What about those of us for whom this is simply NOT true? It’s parallel to telling someone if they keep following their meal plan, they will inevitably feel hunger cues their eating disorder has stolen from them. Okay, but what about the harm caused by this messaging to those for whom this isn’t the case? Those whose brains are just wired differently? (Caption continued in comments)

If I never hear another parent of an autistic or ADHD child or young adult insist they go to therapy because they spend all their time in their room staring at a screen and don’t come say hi to the family or leave to hang out with friends, etc, I will be THRILLED. I understand it can be scary to see a loved one interact with others in a way that strikes you as potentially "unhealthy" - especially if you yourself are fulfilled by social interactions and struggle to wrap your head around happiness being found alone. It makes sense to compassionately and collaboratively assess: is this what they want or is there fear? If all needs were met (including access to communication like AAC), would this still be their choice? ARE all needs met, including safety? If there's no problem, there's no problem. Sometimes the problem is that we exist in an ableist world and folks have been traumatized by previous interactions, so safety IS isolation for the time being until something external changes.

Remember, you don’t have to understand it to accept it. I am a dog person who doesn’t like cats, but I don’t think cat people need to work on their love of cats with a professional; they don’t even need to get more exposure to dogs. Social preferences are just preferences, not illnesses. Beyond preferences, for many ND folks, we're talking about social NEEDS. And lest we forget, autistic brains do not habituate the same way to exposure as allistic brains do, so if we’re forcing someone to engage socially who doesn’t want to do so in a way that seems “healthy” to the majority over and over, they’re just repeatedly miserable at best (albeit perhaps masking), traumatized at worst. If and when a person wants more social opportunities, when they express loneliness, if they indicate their quality of life is impaired by isolation but they’re too fearful to make a change, then we can help figure out how to support on their terms. Furthermore, there’s a lot of generalizations in eating disorder recovery about the role being social plays - a la “You can’t recover alone” and “Isolation is a yellow flag.” Let’s start truly individualizing care. Social needs are a part of neuroDIVERSITY.

If I never hear another parent of an autistic or ADHD child or young adult insist they go to therapy because they spend all their time in their room staring at a screen and don’t come say hi to the family or leave to hang out with friends, etc, I will be THRILLED. I understand it can be scary to see a loved one interact with others in a way that strikes you as potentially "unhealthy" - especially if you yourself are fulfilled by social interactions and struggle to wrap your head around happiness being found alone. It makes sense to compassionately and collaboratively assess: is this what they want or is there fear? If all needs were met (including access to communication like AAC), would this still be their choice? ARE all needs met, including safety? If there's no problem, there's no problem. Sometimes the problem is that we exist in an ableist world and folks have been traumatized by previous interactions, so safety IS isolation for the time being until something external changes.

Remember, you don’t have to understand it to accept it. I am a dog person who doesn’t like cats, but I don’t think cat people need to work on their love of cats with a professional; they don’t even need to get more exposure to dogs. Social preferences are just preferences, not illnesses. Beyond preferences, for many ND folks, we're talking about social NEEDS. And lest we forget, autistic brains do not habituate the same way to exposure as allistic brains do, so if we’re forcing someone to engage socially who doesn’t want to do so in a way that seems “healthy” to the majority over and over, they’re just repeatedly miserable at best (albeit perhaps masking), traumatized at worst. If and when a person wants more social opportunities, when they express loneliness, if they indicate their quality of life is impaired by isolation but they’re too fearful to make a change, then we can help figure out how to support on their terms. Furthermore, there’s a lot of generalizations in eating disorder recovery about the role being social plays - a la “You can’t recover alone” and “Isolation is a yellow flag.” Let’s start truly individualizing care. Social needs are a part of neuroDIVERSITY.

A dietitian in college picked up on my pattern of bingeing only when I “should” be studying, writing a paper, doing laundry, attending a dreaded meeting, etc. It would start out with the thought “I can’t do that til I eat because I’m recovering from an eating disorder, and eating always has to come first,” but after I ate, I didn’t want to do the task any more than when I first had the thought…but since that was the only thing that felt like a valid reason to keep putting it off, I would keep going. “Not done eating yet…I’ll do the paper after.” Therapists’ voices from ED treatment rang in my head: “Who cares about school if you’re dying from an eating disorder?” To be clear, I’m not talking about using recovery as an “excuse.” I’m talking about not NEEDING an excuse. Because it’s true - food is at the base of our hierarchy of needs; without it, we can’t fuel everything else in life. And ALSO, if food is our entire life, if the actions that support recovery are the entirety of how we define recovery, what are we recovering TO? We need both. What if compassion for our ADHD tendency to put off undesirable things was no-strings-attached? What if we accommodated by adjusting expectations or strategies to make the task less difficult, more desirable, or to get through it less painfully? What if we separated food from productivity entirely?

#ADHD #ExecutiveFunctioning #Procastination #EatingDisorderRecovery #Neurodiversity

A dietitian in college picked up on my pattern of bingeing only when I “should” be studying, writing a paper, doing laundry, attending a dreaded meeting, etc. It would start out with the thought “I can’t do that til I eat because I’m recovering from an eating disorder, and eating always has to come first,” but after I ate, I didn’t want to do the task any more than when I first had the thought…but since that was the only thing that felt like a valid reason to keep putting it off, I would keep going. “Not done eating yet…I’ll do the paper after.” Therapists’ voices from ED treatment rang in my head: “Who cares about school if you’re dying from an eating disorder?” To be clear, I’m not talking about using recovery as an “excuse.” I’m talking about not NEEDING an excuse. Because it’s true - food is at the base of our hierarchy of needs; without it, we can’t fuel everything else in life. And ALSO, if food is our entire life, if the actions that support recovery are the entirety of how we define recovery, what are we recovering TO? We need both. What if compassion for our ADHD tendency to put off undesirable things was no-strings-attached? What if we accommodated by adjusting expectations or strategies to make the task less difficult, more desirable, or to get through it less painfully? What if we separated food from productivity entirely?

#ADHD #ExecutiveFunctioning #Procastination #EatingDisorderRecovery #Neurodiversity

Does neurodiversity-affirming care exist? Absolutely, it must. Does a singular neurodiversity-affirming way of practicing exist? I’m not so sure anymore. The reason I like Naureen’s (@rds_for_neurodiversity) Neurodiversity-Affirming Model is that it’s a blueprint meant to guide the discovery of what is affirming for a given neurodivergent client, but it doesn’t define a specific set of tangible steps to “become” neurodiversity-affirming. It doesn’t claim there’s a destination we arrive at. And how could there be, when no brains need the same exact things, according to the neurodiversity paradigm itself? But for the sake of teaching and learning, we who educate on neurodiversity must speak broadly. And I think broad statements get taken out of context and applied as a one-size-fits-all to-do list sometimes, ironically the antithesis of the neurodiversity model.

In neurodiversity education, it’s important to keep reminding generalists that neurodivergent =/= ADHD and autism, that there’s a massive umbrella. But it’s also not enough. Just recognizing someone’s neurodivergence and understanding what that means for your work is not enough, crucial as it is…we have to also collaborate with them and adapt. It makes me think of the boatload of trainings I’ve attended that have essentially been a primer on what neurodiversity is, what to look for, how to assess, etc. without follow-up on implications - what now?
Caption continued in comments…

Does neurodiversity-affirming care exist? Absolutely, it must. Does a singular neurodiversity-affirming way of practicing exist? I’m not so sure anymore. The reason I like Naureen’s (@rds_for_neurodiversity) Neurodiversity-Affirming Model is that it’s a blueprint meant to guide the discovery of what is affirming for a given neurodivergent client, but it doesn’t define a specific set of tangible steps to “become” neurodiversity-affirming. It doesn’t claim there’s a destination we arrive at. And how could there be, when no brains need the same exact things, according to the neurodiversity paradigm itself? But for the sake of teaching and learning, we who educate on neurodiversity must speak broadly. And I think broad statements get taken out of context and applied as a one-size-fits-all to-do list sometimes, ironically the antithesis of the neurodiversity model.

In neurodiversity education, it’s important to keep reminding generalists that neurodivergent =/= ADHD and autism, that there’s a massive umbrella. But it’s also not enough. Just recognizing someone’s neurodivergence and understanding what that means for your work is not enough, crucial as it is…we have to also collaborate with them and adapt. It makes me think of the boatload of trainings I’ve attended that have essentially been a primer on what neurodiversity is, what to look for, how to assess, etc. without follow-up on implications - what now?
Caption continued in comments…

"Their eating disorder is manipulating you. Be careful giving them what they want; you'll enable them." Fellow clinicians, does this sound familiar?

Despite a swelling movement to de-carcerate the eating disorder field, the cages that exist in treatment are pronounced. A prime example is the way in which clinicians have excessive concern about "enabling" clients and their eating disorders. As we articulate here, the notion of enabling inherently implies a hierarchy and represents an imposition of relational carcerality.

In order to provide truly agentic and client led care, we must abolish the systems of hierarchy (which are informed by structural oppression) and invest in relational, feminist, and liberation focused care. This requires a radical shift in the field and we must all be dedicated to this for our clients and for ourselves in the process of collective healing.

#EatingDisorderTreatment #AntiCarceral #AgenticCare #Abolition #Liberation #RadicalMentalHealth

"Their eating disorder is manipulating you. Be careful giving them what they want; you'll enable them." Fellow clinicians, does this sound familiar?

Despite a swelling movement to de-carcerate the eating disorder field, the cages that exist in treatment are pronounced. A prime example is the way in which clinicians have excessive concern about "enabling" clients and their eating disorders. As we articulate here, the notion of enabling inherently implies a hierarchy and represents an imposition of relational carcerality.

In order to provide truly agentic and client led care, we must abolish the systems of hierarchy (which are informed by structural oppression) and invest in relational, feminist, and liberation focused care. This requires a radical shift in the field and we must all be dedicated to this for our clients and for ourselves in the process of collective healing.

#EatingDisorderTreatment #AntiCarceral #AgenticCare #Abolition #Liberation #RadicalMentalHealth

I’d love to hear ideas for other terms that more fully capture the experience of being the ND child of ND parents impacted by their executive functioning challenges around food. I’m certainly not a mission to coin a term here and definitely ruminated on what made the most sense but couldn’t think of anything more fitting (and also catchy). “Back of the pantry” refers to getting creative by turning whatever expired or forgotten about food happened to be left in the pantry into a meal. But there’s so much more to it, and while we may be resilient AF, most of us also struggle with our own EF differences…and being resilient isn’t free; it contributes to neurodivergent burnout. I want to be clear that I am not blaming or shaming parents here. Because I am not a parent, I can only imagine the internal challenges that come with trying to prevent harm, and I don’t have the answers. But I can say with certainty that acknowledging the difficulty and collaborating with your kids to problem-solve on their terms goes a long, long way, even if the limitations remain. It is possible to have good intentions and still have a negative impact, and those intentions DO matter. This post is for the former kids looking for greater understanding of how their relationship with food got to be what it is and where to go next. #ActuallyAutistic #ADHD #EatingDisorderRecovery #ExecutiveDysfunction #NeurodivergentAffirming

I’d love to hear ideas for other terms that more fully capture the experience of being the ND child of ND parents impacted by their executive functioning challenges around food. I’m certainly not a mission to coin a term here and definitely ruminated on what made the most sense but couldn’t think of anything more fitting (and also catchy). “Back of the pantry” refers to getting creative by turning whatever expired or forgotten about food happened to be left in the pantry into a meal. But there’s so much more to it, and while we may be resilient AF, most of us also struggle with our own EF differences…and being resilient isn’t free; it contributes to neurodivergent burnout. I want to be clear that I am not blaming or shaming parents here. Because I am not a parent, I can only imagine the internal challenges that come with trying to prevent harm, and I don’t have the answers. But I can say with certainty that acknowledging the difficulty and collaborating with your kids to problem-solve on their terms goes a long, long way, even if the limitations remain. It is possible to have good intentions and still have a negative impact, and those intentions DO matter. This post is for the former kids looking for greater understanding of how their relationship with food got to be what it is and where to go next. #ActuallyAutistic #ADHD #EatingDisorderRecovery #ExecutiveDysfunction #NeurodivergentAffirming

Calling all eating disorder providers!

I am so excited to step in to co-facilitate the upcoming second round of the ED Provider Process and Support Group while Dr. Jennie Wang-Hall (@dr.jenniewh) is out on maternity leave alongside the wonderful Stacy Rae Godoy, LMFT (@_bolognasandwich_). This group aims to start an open dialogue about the harms that providers have experienced themselves as well as the harms that they have committed, and support each other in our collective healing journey.

*This is for new attendees* If you previously joined the group, please check your email for that specific offering.

Group Details:
- Dates: Friday, August 18th from 1-2pm PST
- Limited to approximately 10-12 attendees per session
- Register via Calendly *link in bio*
- Recommended $20 donation
via Venmo: StacyGodoyLMFT

Together, let's create a supportive community and make a positive impact.
We cannot wait to connect with you!

#eatingdisorderrecovery #eatingdisorderprofessionals #supportgroup #eatingdisorderharmreduction

Calling all eating disorder providers!

I am so excited to step in to co-facilitate the upcoming second round of the ED Provider Process and Support Group while Dr. Jennie Wang-Hall (@dr.jenniewh) is out on maternity leave alongside the wonderful Stacy Rae Godoy, LMFT (@_bolognasandwich_). This group aims to start an open dialogue about the harms that providers have experienced themselves as well as the harms that they have committed, and support each other in our collective healing journey.

*This is for new attendees* If you previously joined the group, please check your email for that specific offering.

Group Details:
- Dates: Friday, August 18th from 1-2pm PST
- Limited to approximately 10-12 attendees per session
- Register via Calendly *link in bio*
- Recommended $20 donation
via Venmo: StacyGodoyLMFT

Together, let's create a supportive community and make a positive impact.
We cannot wait to connect with you!

#eatingdisorderrecovery #eatingdisorderprofessionals #supportgroup #eatingdisorderharmreduction

Thank you to the wonderful neurodivergent followers who contributed to our collective brainstorm about what does and doesn't help in meal support. Reminder that even if "traditional" meal support structures are helpful to you, it doesn't make you less neurodivergent, just privileged to have access to an additional resource more easily. We hope to see the expansion of more accessible meal support in the near future, ideally led by folks with lived experience. Perhaps a silver lining of the often frustrating buzzwordification of neurodiversity? Keep the ideas coming in the comments!

Thank you to the wonderful neurodivergent followers who contributed to our collective brainstorm about what does and doesn't help in meal support. Reminder that even if "traditional" meal support structures are helpful to you, it doesn't make you less neurodivergent, just privileged to have access to an additional resource more easily. We hope to see the expansion of more accessible meal support in the near future, ideally led by folks with lived experience. Perhaps a silver lining of the often frustrating buzzwordification of neurodiversity? Keep the ideas coming in the comments!

I remember going to an eating disorder fundraiser years ago where some treatment center had all its staff wearing shirts that said “Feel to heal” and I scoffed and thought, “Oh, I guess I can’t heal, then.” I also remember watching those Sarah McLachlan ASPCA commercials and feeling so much intense Something followed by what I now know to be relief: “Oh, good, I’m a human, I’m a good person, I’m feeling what other people talk about, this must be sadness.” I identified as “not having feelings” for so long before psychology became a special interest and it occurred to me that perhaps my different experience of emotions didn’t have to be a closely guarded secret (lest my peers be fearful of me), and I could enlist support in figuring out how my emotions compared to those of people around me and work toward acceptance of the gaps instead.

The sense of “brokenness” that neurodiversity-affirming care aims to heal or prevent in ND clients can actually be further exacerbated by efforts to teach skills. We have to check our intentions and ensure we’re not also aiming to fix. I would love to see mental health providers call for as much acceptance of apparent non-feeling as we do of all emotional expression. I would love to see the explosive emotional expressions tended to with an approach that doesn’t require people to be able to see it coming. I don’t have all the answers here, but I’m alexithymic, and I love talking about emotions - it’s like an unexplored cavern with all kinds of discoveries waiting to be examined, their implications understood. Now that I know that’s not an incorrect way to experience these emotions, I no longer deal with the added stress of performing my feelings in a socially acceptable way, and that has done wonders for my mental health. #Alexithymia #ActuallyAutistic #ADHD #NeurodiversityAffirming #Neurodiversity #Neurodivergent

I remember going to an eating disorder fundraiser years ago where some treatment center had all its staff wearing shirts that said “Feel to heal” and I scoffed and thought, “Oh, I guess I can’t heal, then.” I also remember watching those Sarah McLachlan ASPCA commercials and feeling so much intense Something followed by what I now know to be relief: “Oh, good, I’m a human, I’m a good person, I’m feeling what other people talk about, this must be sadness.” I identified as “not having feelings” for so long before psychology became a special interest and it occurred to me that perhaps my different experience of emotions didn’t have to be a closely guarded secret (lest my peers be fearful of me), and I could enlist support in figuring out how my emotions compared to those of people around me and work toward acceptance of the gaps instead.

The sense of “brokenness” that neurodiversity-affirming care aims to heal or prevent in ND clients can actually be further exacerbated by efforts to teach skills. We have to check our intentions and ensure we’re not also aiming to fix. I would love to see mental health providers call for as much acceptance of apparent non-feeling as we do of all emotional expression. I would love to see the explosive emotional expressions tended to with an approach that doesn’t require people to be able to see it coming. I don’t have all the answers here, but I’m alexithymic, and I love talking about emotions - it’s like an unexplored cavern with all kinds of discoveries waiting to be examined, their implications understood. Now that I know that’s not an incorrect way to experience these emotions, I no longer deal with the added stress of performing my feelings in a socially acceptable way, and that has done wonders for my mental health. #Alexithymia #ActuallyAutistic #ADHD #NeurodiversityAffirming #Neurodiversity #Neurodivergent

I was inspired today by @autistic.qualia’s excellent post about how diverse presentations of neurodivergence do not make a person neurotypical, how not being understood by another person doesn’t indicate something about that person's neurotype. No neurotype is a monolith. Disability isn’t a monolith. No human experience is identical to another. And with that, I started thinking about how frustrating it can feel to have your survival strategies, subconscious or otherwise, pathologized without your consent, even if you are put in the sympathetic or “victim” role by the misperceiver. I’m reminded of the client who tried to use AAC in treatment and was told they needed to “learn to use their voice” that was taken from them by an abuser. I’m reminded of the client who was encouraged to ask three questions about a peer’s story before inserting their own similar experience in response to encourage “reciprocal relationships.” I’m reminded of my own experience being told “you need to go home, you’re doing this to yourself, your perfectionism is out of control” when I was burning out at work staying hours past my last client to finish notes I couldn’t focus on. None of us was consulted on what we needed, why we were doing what we were doing; even when we didn’t know, exploration wasn’t offered. Some of us internalized the new narrative and tried to change, prolonging our freedom from neuronormative goals; some of us fought back; some of us are still figuring it out how masking plays a role in our behavior. My request is that we all take an interest in each other’s internal experiences and prioritize them over what we see at the tip of the iceberg.

#ActuallyAutistic #ADHD #NeurodiversityAffirming #Neurodivergent #AutisticMasking

I was inspired today by @autistic.qualia’s excellent post about how diverse presentations of neurodivergence do not make a person neurotypical, how not being understood by another person doesn’t indicate something about that person's neurotype. No neurotype is a monolith. Disability isn’t a monolith. No human experience is identical to another. And with that, I started thinking about how frustrating it can feel to have your survival strategies, subconscious or otherwise, pathologized without your consent, even if you are put in the sympathetic or “victim” role by the misperceiver. I’m reminded of the client who tried to use AAC in treatment and was told they needed to “learn to use their voice” that was taken from them by an abuser. I’m reminded of the client who was encouraged to ask three questions about a peer’s story before inserting their own similar experience in response to encourage “reciprocal relationships.” I’m reminded of my own experience being told “you need to go home, you’re doing this to yourself, your perfectionism is out of control” when I was burning out at work staying hours past my last client to finish notes I couldn’t focus on. None of us was consulted on what we needed, why we were doing what we were doing; even when we didn’t know, exploration wasn’t offered. Some of us internalized the new narrative and tried to change, prolonging our freedom from neuronormative goals; some of us fought back; some of us are still figuring it out how masking plays a role in our behavior. My request is that we all take an interest in each other’s internal experiences and prioritize them over what we see at the tip of the iceberg.

#ActuallyAutistic #ADHD #NeurodiversityAffirming #Neurodivergent #AutisticMasking

This is the first time I’m sharing my take on a topic that isn’t specific to ADHD since my post announcing I’m autistic a few months ago - milestones! However, as you can see, there are many common ADHD experiences that are both similar and co-occur alongside inertia and make its impact more profound, like hyperfocus, demand anxiety, task paralysis, and time agnosia. We don’t HAVE to pick apart what’s what and give it a label unless it feels good or helps us then figure out what action to take. For example, if you resonate with inertia, identifying that that’s what’s causing a difficulty may help you decide that you need more information about what to expect ahead of transitions, while if you thought what was going on was hyperfocus alone, you might’ve been trying to simply motivate yourself with something more interesting, and when that didn’t work, cue negative perception of self. With a new lens, we can access more compassion for ourselves and and brainstorm more useful ways of getting ourselves to Do The Thing besides the very, very tired advice “just do it.”

#AutisticInertia #Inertia #ActuallyAutistic #ADHD #Hyperfocus #DemandAnxiety

This is the first time I’m sharing my take on a topic that isn’t specific to ADHD since my post announcing I’m autistic a few months ago - milestones! However, as you can see, there are many common ADHD experiences that are both similar and co-occur alongside inertia and make its impact more profound, like hyperfocus, demand anxiety, task paralysis, and time agnosia. We don’t HAVE to pick apart what’s what and give it a label unless it feels good or helps us then figure out what action to take. For example, if you resonate with inertia, identifying that that’s what’s causing a difficulty may help you decide that you need more information about what to expect ahead of transitions, while if you thought what was going on was hyperfocus alone, you might’ve been trying to simply motivate yourself with something more interesting, and when that didn’t work, cue negative perception of self. With a new lens, we can access more compassion for ourselves and and brainstorm more useful ways of getting ourselves to Do The Thing besides the very, very tired advice “just do it.”

#AutisticInertia #Inertia #ActuallyAutistic #ADHD #Hyperfocus #DemandAnxiety

I believe there is a lot of nuance in talking about neurodivergent interest-based nervous systems and that hyperfixations and special interests fall somewhere on a nonlinear spectrum related to intensity and duration, the entirety of which is a NECESSITY for regulation and experiencing both safety and pleasure. So given that eating disorders and their associated behaviors often meet these needs as well, it makes a lot of sense that we see so much interplay between them, right? We HAVE to honor the unique ways in which specific neurotypes play a role in the way interests present and last indefinitely - trying to eradicate them is at best telling someone to mask as a “fix” (and we know masking leads to loss of identity and burnout which both exacerbate the problem) and at best is abusive. Most of us don’t choose our SpIns or objects of hyperfixation; they choose us, and we follow. I polled my wonderful followers and SEVERAL folks said something along the lines of “I don’t want to be interested in this, but i am, and I’m making peace with that.” I don’t have the definitive answers, but I am once again asking fellow eating disorder providers to consider neurotype in critically assessing the role of behaviors in collaboration with clients before conceptualizing what is “best” for them.

Note: while the examples provided do appear in boxes, there is a world of overlap and grey in them and any number of defining traits may fit better on the other side for an individual than for another.

#EDrecovery #SpecialInterest #ADHD #Hyperfixation #Hyperfocus #ActuallyAutistic #NeurodivergentAffirming #Neurodiversity #EatingDisorderTreatment

I believe there is a lot of nuance in talking about neurodivergent interest-based nervous systems and that hyperfixations and special interests fall somewhere on a nonlinear spectrum related to intensity and duration, the entirety of which is a NECESSITY for regulation and experiencing both safety and pleasure. So given that eating disorders and their associated behaviors often meet these needs as well, it makes a lot of sense that we see so much interplay between them, right? We HAVE to honor the unique ways in which specific neurotypes play a role in the way interests present and last indefinitely - trying to eradicate them is at best telling someone to mask as a “fix” (and we know masking leads to loss of identity and burnout which both exacerbate the problem) and at best is abusive. Most of us don’t choose our SpIns or objects of hyperfixation; they choose us, and we follow. I polled my wonderful followers and SEVERAL folks said something along the lines of “I don’t want to be interested in this, but i am, and I’m making peace with that.” I don’t have the definitive answers, but I am once again asking fellow eating disorder providers to consider neurotype in critically assessing the role of behaviors in collaboration with clients before conceptualizing what is “best” for them.

Note: while the examples provided do appear in boxes, there is a world of overlap and grey in them and any number of defining traits may fit better on the other side for an individual than for another.

#EDrecovery #SpecialInterest #ADHD #Hyperfixation #Hyperfocus #ActuallyAutistic #NeurodivergentAffirming #Neurodiversity #EatingDisorderTreatment

The neurodiversity model, which combines the social and medical models of disability (learned this conceptualization from @livedexperienceeducator at an @rds_for_neurodiversity speaker series), frames disability as stemming from both ableism/needs unmet by a world built for neurotypical brains AND from inherent traits that are unpleasant to experience (e.g. sensory sensitivities that live in the brain and aren’t caused by people but can certainly be exacerbated by unwillingness to accommodate in the environment). When it comes to ADHDers’ difficulty with tasks, there are a TON of reasons we may struggle, from demand anxiety to executive functioning differences, and niched down, when there’s an eating disorder afoot and the task is eating, throw in anxiety, fear, disgust, etc. to compound it all. But well-meaning friends, family, and providers who don’t experience these things firsthand want to tell us that what works for them should work for us?? No thanks.

Problem #1: It’s insulting and frustrating to learn from this sort of “advice” that the person giving it thinks we haven’t paused to think to try that yet.

Problem #2: It’s easy to conclude that you’re the problem and just need to “try harder” if it’s supposedly so simple. It invites comparison and thus shame.

Solution: If you don’t understand the thing, refer the person to speak to someone who does.

#NeurodiversityAffirming #ADHD #EatingDisorderRecovery #ExecutiveFunctioning #DemandAnxiety #SocialModelofDisability #Neurodivergent #MedicalModel #STFU #NeurotypicalPrivilege

The neurodiversity model, which combines the social and medical models of disability (learned this conceptualization from @livedexperienceeducator at an @rds_for_neurodiversity speaker series), frames disability as stemming from both ableism/needs unmet by a world built for neurotypical brains AND from inherent traits that are unpleasant to experience (e.g. sensory sensitivities that live in the brain and aren’t caused by people but can certainly be exacerbated by unwillingness to accommodate in the environment). When it comes to ADHDers’ difficulty with tasks, there are a TON of reasons we may struggle, from demand anxiety to executive functioning differences, and niched down, when there’s an eating disorder afoot and the task is eating, throw in anxiety, fear, disgust, etc. to compound it all. But well-meaning friends, family, and providers who don’t experience these things firsthand want to tell us that what works for them should work for us?? No thanks.

Problem #1: It’s insulting and frustrating to learn from this sort of “advice” that the person giving it thinks we haven’t paused to think to try that yet.

Problem #2: It’s easy to conclude that you’re the problem and just need to “try harder” if it’s supposedly so simple. It invites comparison and thus shame.

Solution: If you don’t understand the thing, refer the person to speak to someone who does.

#NeurodiversityAffirming #ADHD #EatingDisorderRecovery #ExecutiveFunctioning #DemandAnxiety #SocialModelofDisability #Neurodivergent #MedicalModel #STFU #NeurotypicalPrivilege

Straddling two spaces that don’t interact nearly as much as the clients within them overlap - HAES and neurodiversity-affirming - can be SO challenging as a provider. This post reflects some language I’ve seen promoted by well-meaning eating disorder clinicians that has activated me as both a therapist and an AuDHD human in eating disorder recovery. The thing that gets me is these providers are doing great work to challenge weight stigma, to promote equity, access, and justice for all sized bodies…but not all bodyminds. We’ve seen a shift in the professional ED community for the better over the past decade - most providers are anti-diet, many are fat-positive, as we all should be - and yet, the majority are still setting neurotypical expectations for their neurodivergent clients in the form of boxed in standards to be met. Let’s start letting our clients tell us what recovery means to them. When I was in treatment, I received a handout with the definition of “normal eating” on it and I LIVED by it. I was supposed to sometimes “overeat” and sometimes “undereat” and trust that it would all balance out and sometimes pick broccoli and sometimes cookies and not think too hard about it. All I was really doing, though, was continuing to mask, continuing to conform, further distancing myself from what I wouldn’t know for years was my authentic self. Might I have known sooner if a “right” way to eat hadn’t been pushed so hard?

Thanks, @rds_for_neurodiversity, for helping me find the language to express what wasn’t sitting right with me about this.

#Neurodivergent #NeurodiversityAffirming #EatingDisorderTreatment #PDAaffirming #IntuitiveEating #NormalEating #ARFID #Intersectionality

Straddling two spaces that don’t interact nearly as much as the clients within them overlap - HAES and neurodiversity-affirming - can be SO challenging as a provider. This post reflects some language I’ve seen promoted by well-meaning eating disorder clinicians that has activated me as both a therapist and an AuDHD human in eating disorder recovery. The thing that gets me is these providers are doing great work to challenge weight stigma, to promote equity, access, and justice for all sized bodies…but not all bodyminds. We’ve seen a shift in the professional ED community for the better over the past decade - most providers are anti-diet, many are fat-positive, as we all should be - and yet, the majority are still setting neurotypical expectations for their neurodivergent clients in the form of boxed in standards to be met. Let’s start letting our clients tell us what recovery means to them. When I was in treatment, I received a handout with the definition of “normal eating” on it and I LIVED by it. I was supposed to sometimes “overeat” and sometimes “undereat” and trust that it would all balance out and sometimes pick broccoli and sometimes cookies and not think too hard about it. All I was really doing, though, was continuing to mask, continuing to conform, further distancing myself from what I wouldn’t know for years was my authentic self. Might I have known sooner if a “right” way to eat hadn’t been pushed so hard?

Thanks, @rds_for_neurodiversity, for helping me find the language to express what wasn’t sitting right with me about this.

#Neurodivergent #NeurodiversityAffirming #EatingDisorderTreatment #PDAaffirming #IntuitiveEating #NormalEating #ARFID #Intersectionality

Internalized ableism has a nasty domino effect in which we take what we are told we ought to be able to do and express judgment toward ourselves, which other neurodivergent folks hear and observe and apply to themselves and so on and so forth. I often hear from ND friends and clients, "Well so and so has ADHD and they can do XYZ" as if any neurotype is a monolith. Remember it's neuroDIVERSITY, meaning every brain works differently. Please be gentle with yourself, even if you can't do it FOR yourself right now. We all deserve to play on a level field, but the reality is that people with NT privilege tend to believe the field is already level because they aren't personally affected, and they also tend to hold the power to gatekeep the leveler (e.g. accommodations, resources, etc.) Keep this in mind when responding to your inner critic. #Neurodivergent #NeurodiversityAffirming #Neuronormativity #Ableism #Accommodations #InnerCritic #SelfCompassion

Internalized ableism has a nasty domino effect in which we take what we are told we ought to be able to do and express judgment toward ourselves, which other neurodivergent folks hear and observe and apply to themselves and so on and so forth. I often hear from ND friends and clients, "Well so and so has ADHD and they can do XYZ" as if any neurotype is a monolith. Remember it's neuroDIVERSITY, meaning every brain works differently. Please be gentle with yourself, even if you can't do it FOR yourself right now. We all deserve to play on a level field, but the reality is that people with NT privilege tend to believe the field is already level because they aren't personally affected, and they also tend to hold the power to gatekeep the leveler (e.g. accommodations, resources, etc.) Keep this in mind when responding to your inner critic. #Neurodivergent #NeurodiversityAffirming #Neuronormativity #Ableism #Accommodations #InnerCritic #SelfCompassion

Everything I've learned about harm reduction and its roots has been from @nalgonapositivitypride and conversations within our Power Rangers circle (+ @bodyjustice.therapist, @dr.jenniewh, and @the.lovelybecoming who are all great resources for all things abolition) AND the book "Saving Our Own Lives" by Shira Hassan. These additional caveats for neurodivergent brains are born from observation, conversation with other ND folks, and lived experience, as all my posts are, but it feels particularly important to state here because there is a pattern I've noticed of people implementing radical harm reduction and claiming it as an original concept they've created, or worse, attributing it to social workers and public health officials. Now that that's clarified, I'd also like to add that neurodivergent people are JUST as welcome to eating disorder harm reduction strategies as anyone else. To quote Gloria when I ran these ideas by her, while someone who is being pushed to assimilate against their well will find harm reduction irrelevant, "if an individual wants to attempt to assimilate I do think they have the right for HR services." Let's not forget that while often masking, for example, is seen by NTs as self-betrayal, manipulation, living inauthentically, etc. it is often a literal SURVIVAL strategy for us. And it also directly causes burnout, meltdowns, shutdowns, etc...we can simultaneously accept that masking is a harm reduction strategy for the distress caused by large-scale ableism and work to implement other HR strategies to manage the negative impacts that will inevitably arise. Sometimes it's all about band-aids, band-aids, band-aids, and that has to be okay. Stop telling people to get to the "root" of the issue when the root is covered up by roadblocks set up by the dominant group. We'll get there if and when we get there. Meanwhile, the examples mentioned in this post are just that - examples - and I'd love input from the community on strategies you use or distressing problems that arise for you for which you're currently looking for HR strategies to troubleshoot. #HarmReduction #EDHR #EatingDisorderRecovery #Neurodivergent #NeurodiversityAffirming

Everything I've learned about harm reduction and its roots has been from @nalgonapositivitypride and conversations within our Power Rangers circle (+ @bodyjustice.therapist, @dr.jenniewh, and @the.lovelybecoming who are all great resources for all things abolition) AND the book "Saving Our Own Lives" by Shira Hassan. These additional caveats for neurodivergent brains are born from observation, conversation with other ND folks, and lived experience, as all my posts are, but it feels particularly important to state here because there is a pattern I've noticed of people implementing radical harm reduction and claiming it as an original concept they've created, or worse, attributing it to social workers and public health officials. Now that that's clarified, I'd also like to add that neurodivergent people are JUST as welcome to eating disorder harm reduction strategies as anyone else. To quote Gloria when I ran these ideas by her, while someone who is being pushed to assimilate against their well will find harm reduction irrelevant, "if an individual wants to attempt to assimilate I do think they have the right for HR services." Let's not forget that while often masking, for example, is seen by NTs as self-betrayal, manipulation, living inauthentically, etc. it is often a literal SURVIVAL strategy for us. And it also directly causes burnout, meltdowns, shutdowns, etc...we can simultaneously accept that masking is a harm reduction strategy for the distress caused by large-scale ableism and work to implement other HR strategies to manage the negative impacts that will inevitably arise. Sometimes it's all about band-aids, band-aids, band-aids, and that has to be okay. Stop telling people to get to the "root" of the issue when the root is covered up by roadblocks set up by the dominant group. We'll get there if and when we get there. Meanwhile, the examples mentioned in this post are just that - examples - and I'd love input from the community on strategies you use or distressing problems that arise for you for which you're currently looking for HR strategies to troubleshoot. #HarmReduction #EDHR #EatingDisorderRecovery #Neurodivergent #NeurodiversityAffirming

This post brought to you by well-meaning clinicians who are really trying to prioritize autonomy but just need some tweaking to their methodology. If you've felt truly "met where you're at" by a clinician, what did that look like? Side note: if you have questions about behavior modification or this is the first time you’re hearing that even positive reinforcement can do harm, I recommend the book “Punished by Rewards” by Alfie Kohn. #EatingDisorderTreatment #ABAIsAbuse #NeurodivergentAffirming #PDAaffirming #TraumaInformed #arfid

This post brought to you by well-meaning clinicians who are really trying to prioritize autonomy but just need some tweaking to their methodology. If you've felt truly "met where you're at" by a clinician, what did that look like? Side note: if you have questions about behavior modification or this is the first time you’re hearing that even positive reinforcement can do harm, I recommend the book “Punished by Rewards” by Alfie Kohn. #EatingDisorderTreatment #ABAIsAbuse #NeurodivergentAffirming #PDAaffirming #TraumaInformed #arfid

Did you know up to 60% of ADHDers are also autistic? I did, and I’ve known for a whiiiile because of the work I do, and I recognized the autistic traits of the clients I’ve connected with so well in myself (hello, double empathy problem), and I still told myself, “Nah, self-diagnosis is totally valid…but not for you, ya faker.” Trust me when I say I have done some DIGGING into the hard bedrock of my soul to finally understand and accept my autistic identity. And it’s not because of the internalized shame or stigma or ableism I had meta-emotions about for a long time. Turns out the ED-related cheesy-because-it’s-true cliche of fearing taking up “too much space” popped up in this process: I was worried about taking up space in a community I was “incorrect” about belonging to and hurting those that did as a result. Then my good friend @the.lovelybecoming reminded me that taking UP space isn’t the same as taking AWAY space. And another autistic friend inadvertently offered a bleak form of reassurance in response to my concern about taking excessive resources from those who are lower-masking than myself: “What resources?” Quite a truth bomb - there isn’t even support to take away…we ARE each other’s support. No one suffers as a result of my identity becoming more whole and getting my answers to the question that has shifted from a projection of my self-loathing to one of curiosity, discovery, and love over the past several years: “Why am I like this?” By “this” I mean the vast collection of traits that has always made me feel on the outskirts of social dynamics, no matter how hard I worked to “remedy” this: deeply analytical, adept at finding patterns, rebellious against rules that don’t make sense, intensely sensitive but often unable to connect my confusing emotions to a cause or sensation, constantly collecting data and thumbing through files of old data in my mind to tend to my bottom-up processing style. These are just some pieces of my particular flavor of autism. I used to think autism was a linear spectrum and a monolith. Listening to #ActuallyAutistic friends, colleagues, role models, and clients taught me better. Continued in comments...

Did you know up to 60% of ADHDers are also autistic? I did, and I’ve known for a whiiiile because of the work I do, and I recognized the autistic traits of the clients I’ve connected with so well in myself (hello, double empathy problem), and I still told myself, “Nah, self-diagnosis is totally valid…but not for you, ya faker.” Trust me when I say I have done some DIGGING into the hard bedrock of my soul to finally understand and accept my autistic identity. And it’s not because of the internalized shame or stigma or ableism I had meta-emotions about for a long time. Turns out the ED-related cheesy-because-it’s-true cliche of fearing taking up “too much space” popped up in this process: I was worried about taking up space in a community I was “incorrect” about belonging to and hurting those that did as a result. Then my good friend @the.lovelybecoming reminded me that taking UP space isn’t the same as taking AWAY space. And another autistic friend inadvertently offered a bleak form of reassurance in response to my concern about taking excessive resources from those who are lower-masking than myself: “What resources?” Quite a truth bomb - there isn’t even support to take away…we ARE each other’s support. No one suffers as a result of my identity becoming more whole and getting my answers to the question that has shifted from a projection of my self-loathing to one of curiosity, discovery, and love over the past several years: “Why am I like this?” By “this” I mean the vast collection of traits that has always made me feel on the outskirts of social dynamics, no matter how hard I worked to “remedy” this: deeply analytical, adept at finding patterns, rebellious against rules that don’t make sense, intensely sensitive but often unable to connect my confusing emotions to a cause or sensation, constantly collecting data and thumbing through files of old data in my mind to tend to my bottom-up processing style. These are just some pieces of my particular flavor of autism. I used to think autism was a linear spectrum and a monolith. Listening to #ActuallyAutistic friends, colleagues, role models, and clients taught me better. Continued in comments...

This post is inspired by convos with both @mkimrdn and @rds_for_neurodiversity about how sick we are of therapists and dietitians responding to inquiries for providers competent in working with ARFID and other specific neurodivergences when what they’re aaaactually saying is that they provide a vague version of conversion therapy with the goal of making someone as close to neurotypical-presenting as possible…and also that they want the money. If it weren’t so insidious, it might not hurt so much. If you’re going to try to erase the neurodivergence from someone’s identity, can you just be for real about it and stop using infantilizing language about how ND folks are “so sweet” or how neurodivergence is a “superpower”? We deserve to know who is safe. In the current context of our field’s buzzwordification of neurodiversity, it is increasingly difficult to know who is ACTUALLY affirming and who’s just keeping up with the lingo. And that poses a genuine safety concern to those of us who are inclined to give everyone the benefit of the doubt. Be transparent about what you know. Well-intentioned isn’t good enough! If you’re looking for an ND-affirming provider who knows EDs, or you are one yourself, please check out the always-expanding database of providers at the link in my bio. #NeurodiversityAffirming #Ableism #Autonomy #Transparency #EDRecovery #EDTreatment

This post is inspired by convos with both @mkimrdn and @rds_for_neurodiversity about how sick we are of therapists and dietitians responding to inquiries for providers competent in working with ARFID and other specific neurodivergences when what they’re aaaactually saying is that they provide a vague version of conversion therapy with the goal of making someone as close to neurotypical-presenting as possible…and also that they want the money. If it weren’t so insidious, it might not hurt so much. If you’re going to try to erase the neurodivergence from someone’s identity, can you just be for real about it and stop using infantilizing language about how ND folks are “so sweet” or how neurodivergence is a “superpower”? We deserve to know who is safe. In the current context of our field’s buzzwordification of neurodiversity, it is increasingly difficult to know who is ACTUALLY affirming and who’s just keeping up with the lingo. And that poses a genuine safety concern to those of us who are inclined to give everyone the benefit of the doubt. Be transparent about what you know. Well-intentioned isn’t good enough! If you’re looking for an ND-affirming provider who knows EDs, or you are one yourself, please check out the always-expanding database of providers at the link in my bio. #NeurodiversityAffirming #Ableism #Autonomy #Transparency #EDRecovery #EDTreatment

Lots of gratitude to the follower who reached out to me after noticing my facial tics on an IG live. While in the past having them pointed out would've been my greatest fear, this was a new experience for me - being seen as representation rather than as less than or presumed to be anxious or incapable, not having my insecurity activated. This person also got me thinking about the role my tics have played in my experience of an eating disorder, which is what this post is based on, since research isn't there and this is a topic I haven't ever heard talked about. In addition to these 3 points, bullies target people with outward signs of difference, so an ED can serve as a coping mechanism for the trauma we live with as a result. Studies have shown than 50 to 70% children with ADHD also have a tic disorder. And tic disorders are shown to be correlated with higher rates of depression and aggression. I have a theory that one big reason tics often get left out of conversations in neurodiversity-affirming spaces is because they cause us distress, and if we could simply choose to not have them anymore, most of us would, which doesn't align with what we are taught it means to be affirming. But I leave you with the wisdom of Nick Walker: "The neurodiversity paradigm does not reject the pathologizing of these forms of neurodivergence, and the Neurodiversity Movement does not object to consensual attempts to cure them (but still most definitely objects to discrimination against people who have them)." Edited to add: the reasons for distress extend beyond stigma - some tics cause pain and nerve function issues, distraction that exacerbates brain fog, and affect access to speech. #neurodiversity #TicDisorder #NeurodiversityAffirming #ADHD #Ableism #EatingDisorders #SocialAnxiety #tourettes

Lots of gratitude to the follower who reached out to me after noticing my facial tics on an IG live. While in the past having them pointed out would've been my greatest fear, this was a new experience for me - being seen as representation rather than as less than or presumed to be anxious or incapable, not having my insecurity activated. This person also got me thinking about the role my tics have played in my experience of an eating disorder, which is what this post is based on, since research isn't there and this is a topic I haven't ever heard talked about. In addition to these 3 points, bullies target people with outward signs of difference, so an ED can serve as a coping mechanism for the trauma we live with as a result. Studies have shown than 50 to 70% children with ADHD also have a tic disorder. And tic disorders are shown to be correlated with higher rates of depression and aggression. I have a theory that one big reason tics often get left out of conversations in neurodiversity-affirming spaces is because they cause us distress, and if we could simply choose to not have them anymore, most of us would, which doesn't align with what we are taught it means to be affirming. But I leave you with the wisdom of Nick Walker: "The neurodiversity paradigm does not reject the pathologizing of these forms of neurodivergence, and the Neurodiversity Movement does not object to consensual attempts to cure them (but still most definitely objects to discrimination against people who have them)." Edited to add: the reasons for distress extend beyond stigma - some tics cause pain and nerve function issues, distraction that exacerbates brain fog, and affect access to speech. #neurodiversity #TicDisorder #NeurodiversityAffirming #ADHD #Ableism #EatingDisorders #SocialAnxiety #tourettes

The journal entry featured here is in response to the popular prompt “What will a day in my life look like when I’m recovered?” and its implication that one not only can choose a “full recovery” but can decide what they want that to look like for them. Sounds like it prioritizes autonomy, right? As long as what you’re choosing isn’t stopping short at “quasi-recovery,” or “settling,” in which case the ED must still be controlling you. In reality, ND brains will want and need different things than what we’re told we’re supposed to - that’s not a watered down version of recovery! If I had received care that met my ADHD brain where it was, my response may not have been a bunch of canned fantasies beyond my reach that would only lead to disappointment, self-blame, and several more years than necessary trying to paint my life the boring tan color my providers sold me on.

Similarly, we often hear that “recovery isn’t linear” right before we’re presented with a binary menu of recovering or recovered. The platitudes are only as effective as their relevance to the audience they’re meant to inspire.

#EatingDisorderRecovery #NeurodiversityAffirming #Ableism #Recovered

The journal entry featured here is in response to the popular prompt “What will a day in my life look like when I’m recovered?” and its implication that one not only can choose a “full recovery” but can decide what they want that to look like for them. Sounds like it prioritizes autonomy, right? As long as what you’re choosing isn’t stopping short at “quasi-recovery,” or “settling,” in which case the ED must still be controlling you. In reality, ND brains will want and need different things than what we’re told we’re supposed to - that’s not a watered down version of recovery! If I had received care that met my ADHD brain where it was, my response may not have been a bunch of canned fantasies beyond my reach that would only lead to disappointment, self-blame, and several more years than necessary trying to paint my life the boring tan color my providers sold me on.

Similarly, we often hear that “recovery isn’t linear” right before we’re presented with a binary menu of recovering or recovered. The platitudes are only as effective as their relevance to the audience they’re meant to inspire.

#EatingDisorderRecovery #NeurodiversityAffirming #Ableism #Recovered

As a therapist with several sub-specialties at multiple intersections who engages in lifelong learning, I attach several adjectives to my title, including anti-diet, anti-carceral, anti-racist, fat positive, client-centered, trans-affirming and more…but the one I get asked most often to expand on is Neurodivergent-Affirming. Why? Well, I think it’s vague, and folks want a step-by-step how-to list. If only! To be fair, it’s a mix of both potential ND clients and fellow clinicians asking. I think that the former have often been burned by therapists claiming to be ND-affirming who just happened to know the diagnostic criteria for various neurotypes but aren’t working to unpack their ableism and are running sessions the same as they would for anyone, and doing so with a focus on trying to solve a problem, to build what they consider skills (social, executive functioning, etc.), even if that doesn’t align with the client’s goals or abilities. And I think the latter are (usually…hopefully) truly trying to do better, to do more. This list is just a glimpse at what my sessions look like, and of course this is entirely varied on a case-by-case basis, and each point comprises so many different activities, talking points, directions to go that I have at the ready (e.g. book excerpts to discuss, games, art prompts, worksheets, sensory tools…something for everyone). Some people need me to shut up while they put everything out on the table. Some people need an agenda and a set amount of time to talk about each item. Much of the work happens when we figure out what those needs are, and we do so by trial and error. If it doesn’t feel useful, we shift course.

What work have you done with your ND-affirming therapist that has been a game-changer? What might be helpful to ask for?

#Neurodivergent #NeurodiversityAffirming #AuDHD #Therapy #MentalHealth

As a therapist with several sub-specialties at multiple intersections who engages in lifelong learning, I attach several adjectives to my title, including anti-diet, anti-carceral, anti-racist, fat positive, client-centered, trans-affirming and more…but the one I get asked most often to expand on is Neurodivergent-Affirming. Why? Well, I think it’s vague, and folks want a step-by-step how-to list. If only! To be fair, it’s a mix of both potential ND clients and fellow clinicians asking. I think that the former have often been burned by therapists claiming to be ND-affirming who just happened to know the diagnostic criteria for various neurotypes but aren’t working to unpack their ableism and are running sessions the same as they would for anyone, and doing so with a focus on trying to solve a problem, to build what they consider skills (social, executive functioning, etc.), even if that doesn’t align with the client’s goals or abilities. And I think the latter are (usually…hopefully) truly trying to do better, to do more. This list is just a glimpse at what my sessions look like, and of course this is entirely varied on a case-by-case basis, and each point comprises so many different activities, talking points, directions to go that I have at the ready (e.g. book excerpts to discuss, games, art prompts, worksheets, sensory tools…something for everyone). Some people need me to shut up while they put everything out on the table. Some people need an agenda and a set amount of time to talk about each item. Much of the work happens when we figure out what those needs are, and we do so by trial and error. If it doesn’t feel useful, we shift course.

What work have you done with your ND-affirming therapist that has been a game-changer? What might be helpful to ask for?

#Neurodivergent #NeurodiversityAffirming #AuDHD #Therapy #MentalHealth

Please read my recent post on stimulants and eating disorders if you’re not clear on where I stand. Any med-shaming or fear-mongering comments about stimulants as a treatment option will be deleted.

On a personal note, I have long struggled with scarcity mentality around my stimulant prescription. It started about a year after my diagnosis when I had the privilege of a fairly smooth, easy process to starting and adjusting meds until I found a good fit for my needs. Then I moved to a new state where substance use was criminalized and laws related to controlled substance prescriptions (in the name of safety) were such that I was treated with suspicion and went through nearly impossible red tape without the spoons to do so because - you guessed it, I was unmedicated. After spending way too much money working my way through several providers who told me I seemed to be functioning just fine without my meds, drug tested me repeatedly in disbelief, and lectured me on “lifestyle changes” and non-stimulants I should try instead, I finally found someone who actually listened to me. But then something funny happened - prescription bottle in hand, I couldn’t bring myself to actually take this pill I had endured so much to get. I was suffering from the same scarcity mindset I thought I had beat in my eating disorder recovery. What if my provider changed their mind? What if the pharmacist thought I looked too excited in line next time? I felt had to make the most of this while I had it because surely it wouldn’t last, and that meant using it only on days when my schedule was a certain level of chaotic (not, I should add, how it was prescribed), even though that meant under-performing or forgoing basic needs on less busy days. This contributed heavily to my internalized capitalism, my belief that I could only justify taking the path of least resistance if I was producing enough and that otherwise, I just had to “try harder.” Many shame spirals ensued. Much deconstruction of this narrative in therapy followed.

Since then, I’ve done a lot of internal work on challenging these fears...(continued in comments!)

Please read my recent post on stimulants and eating disorders if you’re not clear on where I stand. Any med-shaming or fear-mongering comments about stimulants as a treatment option will be deleted.

On a personal note, I have long struggled with scarcity mentality around my stimulant prescription. It started about a year after my diagnosis when I had the privilege of a fairly smooth, easy process to starting and adjusting meds until I found a good fit for my needs. Then I moved to a new state where substance use was criminalized and laws related to controlled substance prescriptions (in the name of safety) were such that I was treated with suspicion and went through nearly impossible red tape without the spoons to do so because - you guessed it, I was unmedicated. After spending way too much money working my way through several providers who told me I seemed to be functioning just fine without my meds, drug tested me repeatedly in disbelief, and lectured me on “lifestyle changes” and non-stimulants I should try instead, I finally found someone who actually listened to me. But then something funny happened - prescription bottle in hand, I couldn’t bring myself to actually take this pill I had endured so much to get. I was suffering from the same scarcity mindset I thought I had beat in my eating disorder recovery. What if my provider changed their mind? What if the pharmacist thought I looked too excited in line next time? I felt had to make the most of this while I had it because surely it wouldn’t last, and that meant using it only on days when my schedule was a certain level of chaotic (not, I should add, how it was prescribed), even though that meant under-performing or forgoing basic needs on less busy days. This contributed heavily to my internalized capitalism, my belief that I could only justify taking the path of least resistance if I was producing enough and that otherwise, I just had to “try harder.” Many shame spirals ensued. Much deconstruction of this narrative in therapy followed.

Since then, I’ve done a lot of internal work on challenging these fears...(continued in comments!)

Imposter syndrome and denial are different. In the case of the former, we experience anxiety that we are not who we claim to be, that we are pretending, that those who validate this identity in us have it all wrong for one reason or another, especially that we have fooled them in some way. In the latter, we deny that anything is wrong as a means of protecting a coping mechanism. Here I’ve used ARFID and ADHD as examples because in my experience, it often takes people a long time to conclude that they have these diagnoses due to misunderstanding what they are “supposed to” look like and when the do finally identify it, they are often questioned by others about their intentions (e.g. “I don’t think you have ADHD, I think you just need to work harder”) or they anticipate this feedback even if they haven’t received it and internalize it as their own narrative to beat others to the punch and lessen the blow. Imposter syndrome can and does show up in all eating disorders and all types of neurodivergence. But what’s usually true is that those who are pretending or making excuses or whatever it is you’re telling yourself are not the ones who over-think and worry about being deceitful; it’s the other way around. It’s okay - important, even - to explore, to question “Does this fit me, or might something else be going on here?” but if your exploration is based in shame and self-antagonism, it’s not really helping you. Don’t forget to include the question “Who is my self-doubt benefiting?” to your thought lineup. There is no correct way to struggle with something. Remember that diagnoses are just a bunch of people’s best guesses at how traits tend to cluster together, and those guesses are ever-evolving. They’re best used to understand, empower, validate, and connect to community. So let them.
#EatingDisorderRecovery #NeurodiversityAffirming #ADHD #ARFID #ImposterSyndrome

Imposter syndrome and denial are different. In the case of the former, we experience anxiety that we are not who we claim to be, that we are pretending, that those who validate this identity in us have it all wrong for one reason or another, especially that we have fooled them in some way. In the latter, we deny that anything is wrong as a means of protecting a coping mechanism. Here I’ve used ARFID and ADHD as examples because in my experience, it often takes people a long time to conclude that they have these diagnoses due to misunderstanding what they are “supposed to” look like and when the do finally identify it, they are often questioned by others about their intentions (e.g. “I don’t think you have ADHD, I think you just need to work harder”) or they anticipate this feedback even if they haven’t received it and internalize it as their own narrative to beat others to the punch and lessen the blow. Imposter syndrome can and does show up in all eating disorders and all types of neurodivergence. But what’s usually true is that those who are pretending or making excuses or whatever it is you’re telling yourself are not the ones who over-think and worry about being deceitful; it’s the other way around. It’s okay - important, even - to explore, to question “Does this fit me, or might something else be going on here?” but if your exploration is based in shame and self-antagonism, it’s not really helping you. Don’t forget to include the question “Who is my self-doubt benefiting?” to your thought lineup. There is no correct way to struggle with something. Remember that diagnoses are just a bunch of people’s best guesses at how traits tend to cluster together, and those guesses are ever-evolving. They’re best used to understand, empower, validate, and connect to community. So let them.
#EatingDisorderRecovery #NeurodiversityAffirming #ADHD #ARFID #ImposterSyndrome

Aphantasia, like ADHD, is a neurological difference affecting processing, learning, and functioning. While some of us are hyper-visual and put mental images to every source of sensory input (as in synesthesia), some of us are hypo-visual to the degree that we aren’t able to imagine what anything looks like, even when given detailed descriptions. Similar to ADHD, aphants must develop coping tools for organizing and recalling information that are concrete and tangible. The overlap between aphantasia and ADHD is unclear; I couldn’t find research because of how little-known this pocket of neurodivergence seems to be. To expand on some of the implications of aphantasia in this post:
-Portion size guidelines like “slice of bread as big of a deck of cards" aren't useful to aphants, so they must either rely on measurements, which can trigger intrusive thoughts, or accept uncertainty, which is of course very difficult to do in early recovery.
-Having to look in the mirror to experience a sense of embodied and for practical information about their bodies because of not being able to imagine what they look like; this can exacerbate pre-occupation and makes traditional advice to abstain from body checking inaccessible (continued in comments)

Aphantasia, like ADHD, is a neurological difference affecting processing, learning, and functioning. While some of us are hyper-visual and put mental images to every source of sensory input (as in synesthesia), some of us are hypo-visual to the degree that we aren’t able to imagine what anything looks like, even when given detailed descriptions. Similar to ADHD, aphants must develop coping tools for organizing and recalling information that are concrete and tangible. The overlap between aphantasia and ADHD is unclear; I couldn’t find research because of how little-known this pocket of neurodivergence seems to be. To expand on some of the implications of aphantasia in this post:
-Portion size guidelines like “slice of bread as big of a deck of cards" aren't useful to aphants, so they must either rely on measurements, which can trigger intrusive thoughts, or accept uncertainty, which is of course very difficult to do in early recovery.
-Having to look in the mirror to experience a sense of embodied and for practical information about their bodies because of not being able to imagine what they look like; this can exacerbate pre-occupation and makes traditional advice to abstain from body checking inaccessible (continued in comments)

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